New Symptoms on A Long Overdue TripAs a lupus warrior who got diagnosed with Sjogren's and non-Hodgkin's lymphoma, I have been very hesitant to travel. I didn't know how my body was going to react. With...Reactions0reactionsComments0 comments
A Man's Journey Through a Woman's DiseaseOne of the most pervasive myths is that lupus is solely a woman’s disease. As a man living with lupus, I navigate a landscape riddled with challenges and misunderstandings that...Reactions0reactionsComments2 comments
My Lupus Fatigue Is Worse in the MorningsAsk most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel increased fatigue or joint pain at the end...Reactions0reactionsComments0 comments
Lupus and Getting A Yearly Skin CheckEver since my lupus diagnosis in 2017, my relationship with the sun has drastically changed. Growing up, I never was into skincare or thought about the lifelong effects of the...Reactions0reactionsComments0 comments
Work AccommodationsI wake up in the morning with work, work, work, by Rihanna playing in my head, because that is all I do. I go to work, and am a mom...Reactions0reactionsComments0 comments
I Didn't Know I Had a Story, Until I Told My StoryLife has a way of surprising us. Sometimes, the most profound stories emerge from the most unexpected places. My journey with systemic lupus erythematosus (SLE) taught me that resilience and...Reactions0reactionsComments0 comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me...Reactions0reactionsComments0 comments
Dancing with the Butterfly and Taking Control of My Lupus JourneyLiving with lupus is like waltzing with a butterfly in a hurricane. One moment, I'm basking in the sunshine of energy. The next, I'm swept away by a whirlwind of...Reactions0reactionsComments0 comments
What’s The Difference Between Medicare Supplement & Advantage PlansWhen you are signing up for Medicare there are so many options out there and it’s very confusing. Especially when doing it alone, and if you have little knowledge about...Reactions0reactionsComments2 comments
Would I Be Someone Different Without Lupus?Do you ever feel like lupus is chiseling away at who you are? One chip at a time – getting closer to your core with each strike? Pieces falling away...Reactions0reactionsComments6 comments
Lupus and Toxic Positivity: Understanding the Impact on PatientsFor people living with lupus, toxic positivity can impact our lives negatively. Toxic positivity has many definitions. But, overall toxic positivity occurs when encouraging statements are expected to minimize or...Reactions0reactionsComments7 comments
Fertility Treatments in Women With LupusLupus is a disorder of the immune system. It affects 23 million people in the United States. Most people with lupus are women. The disease tends to begin in people...Reactions0reactionsComments0 comments
IntimacyIntimacy and lupus can take a toll on you and your partner, specifically the lack of intimacy that can occur. Is it hard to cater to your partner while sick?...Reactions0reactionsComments0 comments
Common Lupus MythsThe doctor's words, "you have lupus," hung in the air like a storm cloud. I had only heard of lupus in passing. But, my mind raced, filled with images of...Reactions0reactionsComments0 comments
It’s Okay To Have A Pity PartyYears ago something happened where I missed an event of some kind due to my health and lupus. I felt down in the dumps for far too long. So long...Reactions0reactionsComments0 comments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned that lupus symptoms can change and evolve over...Reactions0reactionsComments7 comments
The Vital Role of Clinical Trials in Advancing Lupus TreatmentsDespite significant progress in understanding lupus, there is no cure. Clinical trials play a crucial role in bridging this gap, offering hope for improved management and outcomes for lupus patients...Reactions0reactionsComments0 comments
The Enduring Hardships of LupusOften, my relationship with lupus feels like it’s going to take over my life. It's just too much. I recently read an article that talked about how to maintain your...Reactions0reactionsComments17 comments
Spreading the Word About Life With LupusMay is Lupus Awareness Month! It can be hard for others to understand what it truly means to live with lupus. Throughout the month, we will be highlighting the voices...Reactions0reactionsComments0 comments
Summer Skin Safety GiveawayThe Summer Skin Safety Giveaway is now closed. Thank you for your interest! Here at Lupus.net, we are celebrating Lupus Awareness Month this May by bringing attention to the voices...Reactions0reactionsComments0 comments