Ladymaxi
"Hi y’all! I’m feeling lost. I have yet to hear a doctor say what it is instead of writing it down. Call it what it is! I have lupus erythomosis. I have also recently been diagnosed with raynaulds syndrome. And RA. I take plaquinil and Rinvoq. It does help me. But, I need to feel better. Seems like I can’t beat it."
, I can hear the pain in your post and my heart goes out to you. Managing lupus is a heavy burden to carry on its own, let alone when you add additional diagnoses to the mix. One of our patient leaders wrote about her experience managing multiple conditions at once: https://lupus.net/living/overlapping-health-issues. Figuring out treatment options can be complicated. Do you currently use any alternative therapies alongside your prescribed medications? Some folks will soak in epsom salt baths to help with muscle pain. Sending gentle hugs to you!
Gabby (team member)