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Read conversations, start a discussion, and connect with others about Lupus.

What are some tips for managing a chronic wound?

I have had a chronic wound on my left calf for 110 days now. I’ve been seeing a wound care specialist the...

COVID19

Has anyone with lupus survived COVID-19?...

tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...

Micardis/Telmistartin

Has anyone had any experience with hypertension and been put onto this medication and had side effects or weight gain/weight loss?...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Cutaneous lupus

I have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

Ssi/ssdi

What does a doctor look for or how do you ask your rheumatologist to dx you as disabled when applying for disability....

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone...

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