Hi @Kezza. So sorry to hear that you are experiencing those symptoms. Unfortunately, I don't have any personal experiences I can share but I thought this articles might be helpful: [https://lupus.net/symptoms/rash]. Have you discussed this with your rheumatologist and a dermatologist? We hope you find some answers and relief soon. Please do keep us posted on how you’re doing! - Geri (lupus.net, Team Member)
Thanks for your reply. I have discussed this with my rheumatologist, dermatologist and GP. I am even involved in a Medical Clinical trial in Melbourne, for which I have to travel 4 hours there and 4 hours back every 8 weeks. I have done this for 5 years. I believe they have stabilised my lupus with medication however they don't seem to have an answer for the skin other than Methotrexate. I tried that and I lost all of my hair and it will never grow back. It's just frustrating. I just thought someone would have experienced this and had a natural/alternative remedy.
Geri Rodriguez Moderator
@Kezza I'm sorry to hear that you have tried all avenues with no results. It def is frustrating and I hope there are others on here that can share some insight. Sending lots of positive vibes and hugs.
-Geri(lupus.net, team member)
Doreen H Community Admin
I'm sorry to hear you are not finding any relief from the itching/burning skin. That is truly frustrating. As we wait for others to chime in here on what has made a difference for them, I thought I'd share this article that may provide some helpful information: https://lupus.net/skin. Sending positive vibes your way. ~Doreen (Team Member)
Thanks for replying Doreen. I spend a lot of time reading articles on lupus and skin reactions and it isn't helpful in my case. I'll keep looking. As cortisone creams and ointments have damaged my skin , I have decided I might see if a good naturopath can help. I don't have anything to lose at this point. I appreciate your help - Kezza
Racquel H. Dozier Moderator
Aww I am so sorry that you are dealing with this. I get that burning rash all the time. The thing that helps me are cool showers and I use an over-the-counter moisturizing cream and grease mixed together. I use something called Cerave healing ointment mixed with baby oil and when it's really bad I add Aquaphor. They both help me to calm it down.
My dermatologist also gave me a body wash mixture that helps tremendously daily. It's a mixture of Neutrogena light sesame body oil and Aveeno daily moisturizer. I wash with that daily all in cool showers. That has what has helped me to calm some of it down. It doesn't remove it fully, but it definitely helps, and all of the products are over the counter. As with anything first talk with your doctor to see if you can use those products. I don't get any kickback from the products mentioned lol it is just what has helped me.
The lesions and rashes are never any fun. I hope this helps a little. Sometimes it is about really moisturizing the skin enough to ward off the rash a bit. ~Racquel~ lupus.net team member