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I Need You To Know

What do you think is the most important thing others need to know about having lupus?

  1. For me... I think people need to know how unpredictable lupus is. ~Raquel~ lupus.net team member

    1. I agree. I can go to sleep feeling on top of the world then wake up feeling like I've been ran over by a train. I truly am scared to go to sleep if I'm feeling pretty good. I want to enjoy feeling good for as long as I can. Cause ya never know what you'll wake up to.

      1. That is so true. It can really throw you for a loop. ~Racquel~ lupus.net team moderator

    2. I totally agree! The unpredictability of this disease is the worst. Waking up never knowing what the day is going to bring!

      1. Hi @cowcrazt61 Yes this is so true. Each day is always different. You never know what is going to happen. Even with all the planning one can do. - Geri (lupus.net, team member)

      2. Yes that is the worse. One day it is great the next it is horrible. I try and live in the good moments to savor them when the hard ones come. Thanks for your comment. ~Racquel~ lupus.net team member

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