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I Need You To Know

Racquel H. Dozier's avatar image

Racquel H. Dozier

What do you think is the most important thing others need to know about having lupus?

  1. Racquel H. Dozier's avatar image

    Racquel H. Dozier Moderator & Contributor

    For me... I think people need to know how unpredictable lupus is. ~Raquel~ lupus.net team member

    1. DeniseHKG's avatar image

      DeniseHKG Member

      I agree. I can go to sleep feeling on top of the world then wake up feeling like I've been ran over by a train. I truly am scared to go to sleep if I'm feeling pretty good. I want to enjoy feeling good for as long as I can. Cause ya never know what you'll wake up to.

      1. Racquel H. Dozier's avatar image

        Racquel H. Dozier Moderator & Contributor

        That is so true. It can really throw you for a loop. ~Racquel~ lupus.net team moderator

    2. cowcrazy61's avatar image

      cowcrazy61 Member

      I totally agree! The unpredictability of this disease is the worst. Waking up never knowing what the day is going to bring!

      1. Geri Rodriguez's avatar image

        Geri Rodriguez Moderator & Contributor

        Hi @cowcrazt61 Yes this is so true. Each day is always different. You never know what is going to happen. Even with all the planning one can do. - Geri (lupus.net, team member)

      2. Racquel H. Dozier's avatar image

        Racquel H. Dozier Moderator & Contributor

        Yes that is the worse. One day it is great the next it is horrible. I try and live in the good moments to savor them when the hard ones come. Thanks for your comment. ~Racquel~ lupus.net team member

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