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Read conversations, start a discussion, and connect with others about Lupus.

Body pain/ flare up

I take 5mgs of prednisone every day. I hurt every day and it seems that even my diet affects my body. I get what I call rolling flare ups. Constantly...

Rheumatoid arthritis in my hands and fingers

I don’t have the pain every day is this unusual sometimes I can barely lift my cup of coffee with one hand, my right hand as it is so terribly...

2 with Lupus

We lost both mother with Lupus how do you cope?...

Favorite Book

I am reading a pretty good book called Maame. I went back to my love of reading an actual physical book. It helps me to cope with pain. The escape...

Favorite Moments 2022

We can often focus so much on our pain and we forget about the good that have happened. Do you have any favorite Moments from 2022 to share?...

Favorite Songs

What are two of your favorite songs that motivate you?...

Soundbaths

Has anyone tried soundbaths to help with chronic pain? ~Racquel~ lupus.net team member...

Favorite Quote

What is your go to quote to get you out of a lupus funk? What quote gets you motivated to keep fighting? ~Racquel~ lupus.net team...

Weather and You

Which season do you feel the best? I feel like I am better in summer as long as it’s not too much heat. ~Racquel ~ lupus team member...

Mold

My partner denied my intuition that we have mold. Hired a woman to look into it. It’s all over bathroom. Worsening my symptoms. He has doubted me so much I...

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