Making family believe you really are sickDoes anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...Reactions0reactionsComments1 repliesCopingAnxietyBrain Fog
Sojourns syndrome Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...Reactions0reactionsComments1 repliesCoping
What helped my lupusUpdate: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...Reactions0reactionsComments16 repliesJoint PainTips & AdviceCoping
Im still learning ...does anyone suffer with emotional issues due to lupus? I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...Reactions0reactionsComments7 repliesCoping
How long does it take for an ANA result?Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My C reactive protein came back high, and some...Reactions0reactionsComments1 repliesBrain FogCopingAnxiety
Fever every single night!Does anyone else get fevers nearly every single evening that progressively get worse making you feel like ya have the flu? This happens to me at least 2 weeks out...Reactions0reactionsComments3 repliesSymptomsCoping
Support What support groups or resources have you found most helpful on your lupus journeys?...Reactions0reactionsComments0 repliesCoping
Covid VaccinesAre any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...Reactions0reactionsComments11 repliesCoping
What helps you cope?Lupus can be physically and emotionally draining. What are some things that help you cope on tough days?...Reactions0reactionsComments40 repliesCopingAwareness
Who do you recommend?I'm Penny and I live in Portage MI, and I was diagnosed last year Feb of 2022 with lupus. I'm also an Avon Representative and want to do a fundraiser...Reactions0reactionsComments3 repliesCopingAwareness