What helped my lupus
Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I starter I didn't have any serious symptoms regarding kidneys/heart. Yes, I still have kinda difficulty breathing sometimes, but when I compare all my CHF heart symptoms with today, it's ez pz. It dissapeared. I eat anything. I eat tons of sugar since then, carbs, anything. But I want to reduce that soon with keto diet. I still have super dry mouth and eyes during my sleep. It makes me nuts..
Funny thing - I went to walk, and I had joint pain for about 500 meters. Then, it all dissapeared.
As I said, last piece of puzzle for me is to get rid of dryness of my body.. not only eyes and mouth but also dry nose and hands is very annoying. I also noticed my dry mount get worse after stress. but it's another monster so..
Lastly, face rash seems never go away on its own. I tried fruit diet for 10 days, didn't help. Maybe Keto will fix this.
I recommend you walking consistently. Today's lifestyles just sux. Everybody is sitting at home doing nothing. But not to walk for 2 days, but for 1 month to see.
Also, I used to experience sleep apnea, total nightmare. Now it's gone.
I don't want to say you to eat anything. I just menitoned that, as my main issue was get move. That seems to fix 70% of it. But going keto would make things just better I think. Think about it - when did you not eat any carbs at all? Probably for 1 day.. carbs are everywhere. Try to eliminate em and see what happen..
I have tried all different diets that haven’t worked lol so I resorted to using a food journal to help me understand how foods affect my body and that has helped me. ~Racquel ~ lupus.net team member
so glad you found what can work for you. I’m a walker so I believe that walking is the best exercise that works. Diet is also very important. I found using a food journal was best for me Instead of a specific strict diet. I know it feels good to be able to see the things that you do start to work. Thanks for sharing. ~Racquel~ lupus.net team member yes some foods can definitely cause some inflammation. What I’ve done to find that out for myself is to keep a food diary. This helped me see which foods cause me flares. What May cause me flares may not cause another person flares. So to be sure I started the journal and still keep one now. ~Racquel~ lupus.net team member very helpful articles. Thanks for posting them.
So I am new here. I saw that you said the last piece of the puzzle was finding out why your skin and mouth and everything was so dry now. I was first diagnosed with Sjogren’s syndrome before the lupus diagnosis. Sjogren’s is an autoimmune disease linked closely with lupus, and it makes you have incredibly dry skin dry mouth, even my teeth are falling out because of it. My eyes got so dry that they had to put me on pilocarpine. I know exactly how you feel. Maybe ask your doctor next time you’re there if there’s a chance Sjogrins could be the culprit. I’m not a Doc. Jus from my experience. I pray u feel better soon!
very good points. Does the pilocarpine help at all and is it a drop? ~Racquel~ lupus.net team member life with Lupus et al can be unbelievably difficult. Just a few months ago I had no clue sjogren could impact my joints. Lupus has so many associated conditions.
If u have one autoimmune disease there will be a second or more. Diagnosis is as good as your Rheumatologist. I found mine 🫶sle,thyroid,srogren,fibro of course arthritis.
, Lupus so often brings it's "friends" along with it. How are you managing now that you have a full idea of your diagnoses?
Gabby (team member)these diseases sure do seem to run in packs it can be so overwhelming.~Racquel~ lupus.net team member
