Coping with the first year after diagnosis and tips for keeping track of symptoms I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...Reactions 0 reactions Comments4 repliesCoping
Making family believe you really are sickDoes anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...Reactions 0 reactions Comments1 repliesCopingAnxietyBrain Fog
Sojourns syndrome Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...Reactions 0 reactions Comments1 repliesCoping
What helped my lupusUpdate: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...Reactions 0 reactions Comments16 repliesJoint PainTips & AdviceCoping
Im still learning ...does anyone suffer with emotional issues due to lupus? I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...Reactions 0 reactions Comments7 repliesCoping
How long does it take for an ANA result?Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My C reactive protein came back high, and some...Reactions 0 reactions Comments1 repliesCopingAnxietyBrain Fog
Lupus FunniesI had to laugh at myself looking for my glasses while they are on my face while talking on my phone telling the person I was talking to I can't...Reactions 0 reactions Comments0 repliesCoping
Fever every single night!Does anyone else get fevers nearly every single evening that progressively get worse making you feel like ya have the flu? This happens to me at least 2 weeks out...Reactions 0 reactions Comments3 repliesCopingSymptoms
Support What support groups or resources have you found most helpful on your lupus journeys?...Reactions 0 reactions Comments0 repliesCoping
Covid VaccinesAre any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...Reactions 0 reactions Comments11 repliesCoping