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Read conversations, start a discussion, and connect with others about Lupus.

High heart rate

Hi there, I have been experiencing varying symptoms for many years. Hair loss, mouth ulcers, ache pains (particularly bad knees and hands and wrists), extreme fatigue, migraines, brain fog, and...

Lupus? Rheumatoid arthritis?

Hi everyone im currently undergoing blood tests for rheumatoid arthritis and lupus. Im 37. My symptoms are *Swollen glands on my neck for over a month *mouth ulcers *tired all...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay with being labeled disabled or something else?...

Possible Lupus diagnosis

Hello Everyone! I joined this group as I am waiting to get into a Rheumatologist next month. I wanted to just kind of run my issues and symptoms by everyone...

Help for a diagnosis

I’ve been dealing with Lupus like symptoms for just over two years with my most recent flare kicking off in September. I’ve seen doctors and I still don’t have an...

20 years with MS, now Lupus??

Anyone else have any experience with this???...

got my test results

now they are sending me to an endocrinologist. It may take awhile. I have no idea how to make out these results but it's all autoimmune and thyroid. Everything else...

Similar experiences of early lupus or other diseases?

Hi all! I'll try to keep this brief. I'm just wondering if anyone else had a similar course and if so what your diagnosis was in the end! Abnormal testing...

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...

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