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Read conversations, start a discussion, and connect with others about Lupus.

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...

Anyone here have negative ANA?

I’ve been having symptoms of lupus since I was pregnant with my son, who just turned 6 last week. I’ve brought up all my symptoms to my doctor on multiple...

Misdiagnosis

Far too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...

High heart rate

Hi there, I have been experiencing varying symptoms for many years. Hair loss, mouth ulcers, ache pains (particularly bad knees and hands and wrists), extreme fatigue, migraines, brain fog, and...

Lupus? Rheumatoid arthritis?

Hi everyone im currently undergoing blood tests for rheumatoid arthritis and lupus. Im 37. My symptoms are *Swollen glands on my neck for over a month *mouth ulcers *tired all...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay with being labeled disabled or something else?...

Possible Lupus diagnosis

Hello Everyone! I joined this group as I am waiting to get into a Rheumatologist next month. I wanted to just kind of run my issues and symptoms by everyone...

Help for a diagnosis

I’ve been dealing with Lupus like symptoms for just over two years with my most recent flare kicking off in September. I’ve seen doctors and I still don’t have an...

20 years with MS, now Lupus??

Anyone else have any experience with this???...

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