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Read conversations, start a discussion, and connect with others about Lupus.

Unwanted Lupus Warrior Promotion

Hmmm!! Who would ever thought that I would be living a life as a Lupus Warrior who has been diagnosed almost three years. This new position has not been easy...

Breathing

Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...

New to this

Sorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

Know your triggers?

Do you know your flare triggers? If so, what things are triggering flares for you?...

How do you cope when you are flaring but you have obligations?

Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...

Chemotherapy

Tomorrow I start my first round of chemo. Anyone else had this to try and get into remission? How did you feel after?...

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