"I Feel Like It's Unfair"I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia... This story isn't about my diagnosis though. After... By Kirthi Pather1 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus Has Hurt MeI have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my body, emotionally, spiritually, and physically. The rheumatoid arthritis... By GODHEALS74 min readBookmark for laterReactions 0 reactions Comments10 comments
Lupus Flare UpI've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run to say hi and give me a hug... By CommunityMemberae9db31 min readBookmark for laterReactions 0 reactions Comments2 comments
Still No AnswersStill no diagnosis for me... I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss... By CommunityMember69642001 min readBookmark for laterReactions 0 reactions Comments6 comments
Learning More and MoreI was diagnosed in 2015 RA to only learn that I have SLE Lupus. I just turned 61 on Sunday, I am just starting to experience different issues. I find... By CommunityMember2a39031 min readBookmark for laterReactions 0 reactions Comments6 comments
Alternative TherapyI have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical... By tanialm1 min readBookmark for laterReactions 0 reactions Comments2 comments
My StruggleHello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I... By CommunityMember82848a1 min readBookmark for laterReactions 0 reactions Comments2 comments
My Journey with LupusI have just been diagnosed three weeks ago that I have lupus. Three years ago I had deep vein thrombosis and was put on treatment that I completed after six... By CommunityMemberdeb3361 min readBookmark for laterReactions 0 reactions Comments2 comments
The Big Mean WolfI was diagnosed in February 2000 when I was 30 years old and a 2 year old little boy. My SLE took about two years to be diagnosed. While waiting... By Clapela1 min readBookmark for laterReactions 0 reactions Comments2 comments
Lupus Flare UpdateI ended up seeing my Doctor today as I have some Flu symptoms and he confirmed that I had it mildly as it had caught me during a Lupus Flare... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Long List of DiagnosesAs a child I got sick so often I was on the verge of truancy. It got to the point my parents thought I just didint want to go to... By Briana Perry/Andrews8 min readBookmark for laterReactions 0 reactions Comments1 comments
My Lupus Advocacy Journey“I have good news and I have bad news. That’s what the doctor said to me in 1994 after he figured out what was wrong with me. I had been... By Cmperron2 min readBookmark for laterReactions 0 reactions Comments1 comments
Long Journey With Lupus and Other Autoimmune ConditionsI was diagnosed with SLE lupus, RA, fibromyalgia, among other autoimmune diseases back in 2004. Through the years, I have dealt with many issues, including having silent, as well as... By Nikki Tetreault1 min readBookmark for laterReactions 0 reactions Comments1 comments
ANA Is Negative: What Is Next?I was diagnosed with lupus in December of 2020. I was in extreme pain for years before that. I went to every scheduled doctor's appointment. Every time I have expressed... By TANISHA461 min readBookmark for laterReactions 0 reactions Comments3 comments
A New JourneyI don't know if I shared my story when I signed up in 2021. If I did, since so much has changed and so much is different and has been... By BrandiD491 min readBookmark for laterReactions 0 reactions Comments1 comments
Still LearningAbout to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient! I am learning daily what triggers my flares... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments10 comments
My Life As a Lupus WarriorI'm 65, and was diagnosed in 1987 first with discoid lupus erythematosus (DLE). A few years later with systemic lupus erythematosus (SLE), degenerative bone and muscle disease, fibromyalgia, and arthritis... By CommunityMembere2dc7f1 min readBookmark for laterReactions 0 reactions Comments1 comments
LoopyI was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take... By CommunityMember8601 min readBookmark for laterReactions 0 reactions Comments2 comments
And Then Came LupusAfter many years of getting ill even as a child, lupus should not have been a surprise dx. Fast forward to when I turned 59, still a Clinical Special Education... By Padp1231 min readBookmark for laterReactions 0 reactions Comments4 comments
Lupus After RetirementI developed Rheumatoid arthritis in my early 40's. I was working as a nurse and many days it was difficult to even get out of bet to get to work... By CommunityMembere04d3e1 min readBookmark for laterReactions 0 reactions Comments1 comments