Is it Lyme Disease or Lupus?Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life, I played basketball my high school year and...Reactions0reactionsComments3 comments
It Started With a RashI broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever been tested for lupus. I said no, but...Reactions0reactionsComments1 comments
Is This Lupus?Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does anyone else have this? Yet, on an almost...Reactions0reactionsComments1 comments
ANA Positive, What's Next?I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually became more frequent. I began experiencing extreme fatigue...Reactions0reactionsComments9 comments
Diagnosed with Lupus One Month AgoI broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I feel itchy all night. That's when they decided...Reactions0reactionsComments6 comments
Fear and HopeAt the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick I was sure I was on my deathbed...Reactions0reactionsComments2 comments
Purple Skin PatchI am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my legs are not doing well. Both of my...Reactions0reactionsComments1 comments
My Lupus Plus JourneyHi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on my body that lupus has not effected. Starting...Reactions0reactionsComments3 comments
"I Feel Like It's Unfair"I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia... This story isn't about my diagnosis though. After...Reactions0reactionsComments1 comments
Lupus Has Hurt MeI have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my body, emotionally, spiritually, and physically. The rheumatoid arthritis...Reactions0reactionsComments10 comments
Lupus Flare UpI've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run to say hi and give me a hug...Reactions0reactionsComments2 comments
Still No AnswersStill no diagnosis for me... I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss...Reactions0reactionsComments6 comments
Learning More and MoreI was diagnosed in 2015 RA to only learn that I have SLE Lupus. I just turned 61 on Sunday, I am just starting to experience different issues. I find...Reactions0reactionsComments6 comments
Alternative TherapyI have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical...Reactions0reactionsComments2 comments
My StruggleHello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I...Reactions0reactionsComments2 comments
My Journey with LupusI have just been diagnosed three weeks ago that I have lupus. Three years ago I had deep vein thrombosis and was put on treatment that I completed after six...Reactions0reactionsComments2 comments
The Big Mean WolfI was diagnosed in February 2000 when I was 30 years old and a 2 year old little boy. My SLE took about two years to be diagnosed. While waiting...Reactions0reactionsComments2 comments
Lupus Flare UpdateI ended up seeing my Doctor today as I have some Flu symptoms and he confirmed that I had it mildly as it had caught me during a Lupus Flare...Reactions0reactionsComments1 comments
My Long List of DiagnosesAs a child I got sick so often I was on the verge of truancy. It got to the point my parents thought I just didint want to go to...Reactions0reactionsComments1 comments
My Lupus Advocacy Journey“I have good news and I have bad news. That’s what the doctor said to me in 1994 after he figured out what was wrong with me. I had been...Reactions0reactionsComments1 comments