Surviving the Rollercoaster“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my...reactions22comments
You Don’t Have to Toughen UpFor years, I believed that strength meant a stiff upper lip. As a lupus thriver, I thought I had to be invincible...reactions4comments
Common Lupus MythsThe doctor's words, "you have lupus," hung in the air like a storm cloud. I had only heard of lupus in passing...reactionscomments
The Summer and PhotosensitivityWhen you think of summer, what do you think of first!?! For many people they think of vacations, time at the pool...reactionscomments
Coping with Skin Photosensitivity and Heat Intolerance With LupusBefore I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when...reactions4comments
4 Reflections From Years of Living With Chronic PainWhat health issue have you spent the most time seeking treatment, only to end up with the poorest results? For me, it’s...reactions35comments
My Imperfect Patient ExperienceI've had so many negative experiences at medical appointments that I've stopped counting. I have gone through ridiculous wait times, difficult blood...reactions10comments
I Have Lupus PlusI have lupus plus, meaning I have lupus plus way too many other health issues. When I was diagnosed with lupus, it...reactions23comments
I Wish Advocacy Was UnnecessaryIt would be better if we never needed to advocate. Within my medical world, advocating is usually pretty straightforward. I usually advocate...reactions2comments
Looking Back on My Lupus DiagnosisJanuary 2022 marks the 5th anniversary of my lupus diagnosis. I've learned so many things over the past 5 years, and I've...reactions11comments
4 Reasons Why Fibromyalgia May Be More Harmful Than You ThinkWhat is fibromyalgia? Is it a disorder, a syndrome, an autoimmune disease, or a neurological condition? Is it a result of carrying...reactions7comments
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage...reactions11comments
Lupus In America Data Reveal Struggles with WorkWorking with a chronic condition is difficult. That is an understatement. For some people living with lupus, it is impossible. Our 2nd...reactions5comments
Lupus and Personal FinanceMaking money when you are chronically ill can be a challenge. It is not easy maintaining a job while dealing with achy...reactions7comments
My Experience Getting Botox InjectionsBotox injections are used for a wide variety of medical conditions. I’ve been getting them for cervical dystonia over the past year...reactions2comments
Steroid Rage and Pain ManagementI have a few problems with steroids. Let's be honest, who doesn't? I've never heard of someone having a flawless relationship with...reactions7comments
Sitting Waiting: Lupus Lessons LearnedI sat silent as I sat at my infusion, waiting for the drips to be complete. All I heard were my thoughts...reactions8comments
3 Things that Saved My Sanity and My LifeOne of the drawbacks of being chronically ill is the sheer number of doctors you have to see to manage your care...reactions4comments
Taming My She-wolf: Life with Lupus and the Holiday AftermathAnd so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to...reactions2comments
The Metamorphosis of a Workaholic LupieNot me! I did not take it well when my extremely compassionate and thorough rheumatologist said: "Have you considered retiring?" My mind...reactions6comments
