My Lupus Flare TriggersI wanted to share my own personal experience of what tends to cause my lupus to flare up. This may be like...reactions22comments
10 Things Not to Say to Someone with LupusLupus is an invisible illness, one that you cannot just notice by looking at someone. A disease that may not affect one's...reactions19comments
Understanding Ableism: A Personal JourneyLiving with lupus comes with its own set of challenges, but an often overlooked and deeply painful aspect of the experience is...reactions6comments
Don't Call Me a WarriorHear me out…don't call me a warrior! Because I'm not always a soldier at war. These unseen battles, hold me tight in...reactionscomments
The Transformative Power of Being a Lupus AdvocateHave you ever wondered what it's like to be a lupus advocate? When I was first diagnosed, I never thought I would...reactions4comments
What Lupus Actually Looks LikeOftentimes people who do not have lupus think they know what lupus is. They may know a friend of a friend that...reactions2comments
Was There a “Before Lupus” Version of Me?For a long time, I saw myself as either "before" or "after" when it came to lupus. There was before the diagnosis...reactions6comments
Unexpected Lupus FlareWhen I flare I’ll usually feel pain on my right hip or stiffness in my hands. But, this time I was feeling...reactions8comments
My Newest Symptom: CostochondritisAt the beginning of last year I noticed a new symptom that I’ve never experienced before. I remember I was driving at...reactions9comments
Dear Lupus, I Declare VictoryDear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and...reactionscomments
Are You Self-Gaslighting on Your Lupus Journey?Living with this chronic pain always has me questioning my body on my lupus journey. The chronic nature makes me more aware...reactions12comments
Lupus Awareness Month 2021: We Are Linked by LupusMay is Lupus Awareness Month. This year we honor the incredible community of people who are living with lupus. Too often those...reactionscomments
Lupus Awareness Month 2022: Self-Care MattersMay is Lupus Awareness Month! While awareness is not limited to one month, all of May we will be sharing stories, starting...reactions2comments
Community Views: What Lupus Pain Feels LikeAs with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain...reactions38comments
Community Views: What Lupus Fatigue Feels LikeFatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different...reactions22comments
What Does It Mean to Live With Lupus?Lupus is an autoimmune disease. This means parts of the immune system attack the body. It is challenging for the body to...reactions2comments
Nurturing Roots: Healthy Hair Care MattersI remember combing my hair and clumps being pulled onto the comb. Washing my hair and it just falling out in my...reactionscomments
Motivation Struggles With Chronic IllnessI am exhausted. At first, I thought it was just fatigue towards the tedium and permanence of chronic illness chores, but it’s...reactions6comments
My Video Demonstration of Self-Injecting a BiologicHave you ever wondered what it’s like to do a self-injection? Whether you are trying a biologic for the first time or...reactions4comments
Lupus and More Lung IssuesHaving lupus means you have multiple appointments throughout the years. Not only with your rheumatologist but with the rest of your care...reactions3comments
