Coping with Skin Photosensitivity and Heat Intolerance With LupusBefore I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when...reactions4comments
4 Reflections From Years of Living With Chronic PainWhat health issue have you spent the most time seeking treatment, only to end up with the poorest results? For me, it’s...reactions35comments
My Imperfect Patient ExperienceI've had so many negative experiences at medical appointments that I've stopped counting. I have gone through ridiculous wait times, difficult blood...reactions10comments
I Have Lupus PlusI have lupus plus, meaning I have lupus plus way too many other health issues. When I was diagnosed with lupus, it...reactions23comments
I Wish Advocacy Was UnnecessaryIt would be better if we never needed to advocate. Within my medical world, advocating is usually pretty straightforward. I usually advocate...reactions2comments
Looking Back on My Lupus DiagnosisJanuary 2022 marks the 5th anniversary of my lupus diagnosis. I've learned so many things over the past 5 years, and I've...reactions11comments
4 Reasons Why Fibromyalgia May Be More Harmful Than You ThinkWhat is fibromyalgia? Is it a disorder, a syndrome, an autoimmune disease, or a neurological condition? Is it a result of carrying...reactions2comments
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage...reactions11comments
Lupus In America Data Reveal Struggles with WorkWorking with a chronic condition is difficult. That is an understatement. For some people living with lupus, it is impossible. Our 2nd...reactions5comments
Lupus and Personal FinanceMaking money when you are chronically ill can be a challenge. It is not easy maintaining a job while dealing with achy...reactions7comments
My Experience Getting Botox InjectionsBotox injections are used for a wide variety of medical conditions. I’ve been getting them for cervical dystonia over the past year...reactions2comments
Steroid Rage and Pain ManagementI have a few problems with steroids. Let's be honest, who doesn't? I've never heard of someone having a flawless relationship with...reactions7comments
Sitting Waiting: Lupus Lessons LearnedI sat silent as I sat at my infusion, waiting for the drips to be complete. All I heard were my thoughts...reactions8comments
3 Things that Saved My Sanity and My LifeOne of the drawbacks of being chronically ill is the sheer number of doctors you have to see to manage your care...reactions4comments
Taming My She-wolf: Life with Lupus and the Holiday AftermathAnd so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to...reactions2comments
The Metamorphosis of a Workaholic LupieNot me! I did not take it well when my extremely compassionate and thorough rheumatologist said: "Have you considered retiring?" My mind...reactions6comments
My Lupus Flare TriggersI wanted to share my own personal experience of what tends to cause my lupus to flare up. This may be like...reactions22comments
10 Things Not to Say to Someone with LupusLupus is an invisible illness, one that you cannot just notice by looking at someone. A disease that may not affect one's...reactions19comments
Understanding Ableism: A Personal JourneyLiving with lupus comes with its own set of challenges, but an often overlooked and deeply painful aspect of the experience is...reactions6comments
Don't Call Me a WarriorHear me out…don't call me a warrior! Because I'm not always a soldier at war. These unseen battles, hold me tight in...reactionscomments
