Ode to LupusOde to Lupus is a poem that celebrates the strength and resilience of those with lupus. It highlights the challenges they face, such as financial burden, stigma, and uncertainty. The...Reactions0reactionsComments0 comments
The Impact of Holidays on Individuals with LupusBefore my lupus diagnosis I use to love when the BER months came around: SeptemBER, OctoBER, NovemBER, DecemBER. The BER months signified cooler weather and that Halloween, my birthday, Thanksgiving...Reactions0reactionsComments0 comments
Events for Lupus SupportLiving with lupus, I found myself making friendships and opening doors I could not believe could be opened. I attended a lupus basketball charity event hosted in Dallas, Texas. It...Reactions0reactionsComments0 comments
Laughter is a Healing Power in My Battle Against LupusLiving with lupus has been a challenging journey filled with pain, doctor's appointments, medications, and constant uncertainty. However, amidst the ups and downs, I’ve had to discover a different way...Reactions0reactionsComments0 comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its name suggests: a thick fog in your brain...Reactions0reactionsComments0 comments
I Wish Advocacy Was UnnecessaryIt would be better if we never needed to advocate. Within my medical world, advocating is usually pretty straightforward. I usually advocate for myself by bringing up an issue to...Reactions0reactionsComments0 comments
Human Rhinovirus and LupusInfections and lupus can be a hurdle in the healing process. This recent flare up happened while being a parent to my beautiful kids. I couldn’t smell out of my...Reactions0reactionsComments2 comments
4 Reasons To Seek A Second OpinionYou’ve been waiting MONTHS for an appointment with a rheumatologist. During those months you’ve diagnosed yourself with every possible rheumatic disease. The day of your appointment has come and you’re...Reactions0reactionsComments8 comments
My Experience of Perimenopause and LupusFor months I've been struggling with the classic lupus flare symptoms, and I assumed that this was just a prolonged phase I was experiencing, although one issue that was new...Reactions0reactionsComments5 comments
Looking Back With LupusOver the last year, our community has navigated pain, fatigue, work challenges, medication side effects, support needs, mental health challenges, and more. Our community members have so much in common...Reactions0reactionsComments2 comments
Getting An Infection As A Mom With LupusIt can be intense and overwhelming in the motherhood land. Why? Because having an autoimmune disease like lupus can be troubling with little kids. When your kids get sick, you...Reactions0reactionsComments4 comments
My Experience With The Covid and Flu VaccineThe "BER" months signifies colder temperatures, and signal that flu and cold season will be in full bloom. I have a love/hate relationship with this time of the year because...Reactions0reactionsComments0 comments
3 Ways to Celebrate Fall, Despite LupusWith its pumpkin patches, apple cider, and promise of comfortable weather, autumn is many people's favorite time of the year. The hint of crisp, cool air offers a reprieve from...Reactions0reactionsComments0 comments
What Advice Not to Give Lupus WarriorsI've been living with lupus for over 19 years now, and I've heard a lot of unsolicited advice from well-meaning people. Some of it has been helpful, but a lot...Reactions0reactionsComments13 comments
The Impact of Chronic Illness GriefGetting any diagnosis changes your whole world. Chronic illness grief is a bit more complicated and hits differently because its like a rollercoaster that just never seems to end. One...Reactions0reactionsComments8 comments
Difficulties of Getting a Lupus DiagnosisOn my lupus journey, it took me a number of years before I received my official diagnosis. It was a very long road, with many twists and turns. When I...Reactions0reactionsComments5 comments
Talking With My Doctor About SexIn my experiences so far, I’ve only talked about sex with my rheumatologist as it relates to pregnancy. While it does matter, sometimes greatly, whether or not I’m planning a...Reactions0reactionsComments0 comments
Lupus Life LatelyHaving lupus has been the story of my life. Though life has been living me out honey, I have been hanging on for the best. My doctor recently told me...Reactions0reactionsComments2 comments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)...Reactions0reactionsComments25 comments
8 Cost Effective Ways To Improve Your HealthAs a lupus warrior with multiple diagnoses, taking care of my health is my number one priority. So, I try to do as much as I can to take care...Reactions0reactionsComments0 comments