I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)...reactions25comments
8 Cost Effective Ways To Improve Your HealthAs a lupus warrior with multiple diagnoses, taking care of my health is my number one priority. So, I try to do as much as I can to take care...reactionscomments
Glimmers and Triggers on Your Lupus JourneyWe all know living with lupus can be challenging. When you have to deal with unpredictable flares, symptoms and complications, I know from experience, can really cause some triggering issues...reactions4comments
Self-Advocacy and LupusSelf-advocacy is something that has taken me a while to practice. When I first became sick with lupus symptoms I was feeling scared and lost, I didn’t know where to turn...reactions4comments
Tips for Effective Pain Management AppointmentsThe opiate epidemic in the USA has really made it difficult for those of us who live with true chronic pain conditions. Whether it be from an old injury, a...reactionscomments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life, and my plans and dreams for the future...reactions4comments
Surviving the Rollercoaster“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my breath, while angry tears silently roll down my...reactions22comments
10 Things About Lupus No One Warned Me AboutLiving with lupus can be very challenging. When I was diagnosed I had to learn so many things on my own. No one in my family had lupus or any...reactions22comments
Lupus: The Thief of SleepPicture this: The clock strikes midnight and everyone in my home is embraced in slumbers arms. I’m all tucked in the bed, ready to dive deep into dreamland. I’ve got...reactions23comments
5 Cleaning Strategies That Keep My Home From Getting FilthyMy cleaning tips help me keep my home cleaner, but not sparkling clean. In my opinion, it’s not realistic to have a clean home when you have a chronic illness...reactionscomments
Why I Hate the Phrase "You Can Do Hard Things"Very Unpopular Opinion: It’s time to stop telling people with chronic illness “You can do hard things.” It is not only carelessly overused and cliché, but it can also be...reactionscomments
From Feeling Unheard to Setting Up a Support GroupIn the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals, my employer and even with friendships and relationships...reactionscomments
Infusion Tips When Dealing with Lupus and Other IllnessesThere are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then there are monoclonal antibodies which can be given...reactionscomments
Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when they're going through a divorce, have lost a...reactionscomments
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I talking about jealousy here? Let me give you...reactions2comments
My Breast Cancer ScareI recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my mind went into overdrive assuming the worst-case scenario...reactions2comments
The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself a certain way that helped me defeat lupus...reactionscomments
AllodyniaAllodynia is a type of pain. For people with allodynia, things that should not be painful cause severe pain. Allodynia is a symptom of many conditions. For example, fibromyalgia can...reactionscomments
5 Tips To Manage Lupus With WorkHaving lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of us have to work part- or full-time in...reactions1comment
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've had doctors who tended to be brutally honest...reactions2comments