Glimmers and Triggers on Your Lupus JourneyWe all know living with lupus can be challenging. When you have to deal with unpredictable flares, symptoms and complications, I know from experience, can really cause some triggering issues...Reactions0reactionsComments4 comments
Self-Advocacy and LupusSelf-advocacy is something that has taken me a while to practice. When I first became sick with lupus symptoms I was feeling scared and lost, I didn’t know where to turn...Reactions0reactionsComments4 comments
Tips for Effective Pain Management AppointmentsThe opiate epidemic in the USA has really made it difficult for those of us who live with true chronic pain conditions. Whether it be from an old injury, a...Reactions0reactionsComments0 comments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life, and my plans and dreams for the future...Reactions0reactionsComments4 comments
Surviving the Rollercoaster“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my breath, while angry tears silently roll down my...Reactions0reactionsComments18 comments
10 Things About Lupus No One Warned Me AboutLiving with lupus can be very challenging. When I was diagnosed I had to learn so many things on my own. No one in my family had lupus or any...Reactions0reactionsComments16 comments
Lupus: The Thief of SleepPicture this: The clock strikes midnight and everyone in my home is embraced in slumbers arms. I’m all tucked in the bed, ready to dive deep into dreamland. I’ve got...Reactions0reactionsComments23 comments
5 Cleaning Strategies That Keep My Home From Getting FilthyMy cleaning tips help me keep my home cleaner, but not sparkling clean. In my opinion, it’s not realistic to have a clean home when you have a chronic illness...Reactions0reactionsComments0 comments
Why I Hate the Phrase "You Can Do Hard Things"Very Unpopular Opinion: It’s time to stop telling people with chronic illness “You can do hard things.” It is not only carelessly overused and cliché, but it can also be...Reactions0reactionsComments0 comments
From Feeling Unheard to Setting Up a Support GroupIn the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals, my employer and even with friendships and relationships...Reactions0reactionsComments0 comments
Infusion Tips When Dealing with Lupus and Other IllnessesThere are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then there are monoclonal antibodies which can be given...Reactions0reactionsComments0 comments
Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when they're going through a divorce, have lost a...Reactions0reactionsComments0 comments
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I talking about jealousy here? Let me give you...Reactions0reactionsComments2 comments
My Breast Cancer ScareI recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my mind went into overdrive assuming the worst-case scenario...Reactions0reactionsComments2 comments
The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself a certain way that helped me defeat lupus...Reactions0reactionsComments0 comments
AllodyniaAllodynia is a type of pain. For people with allodynia, things that should not be painful cause severe pain. Allodynia is a symptom of many conditions. For example, fibromyalgia can...Reactions0reactionsComments0 comments
5 Tips To Manage Lupus With WorkHaving lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of us have to work part- or full-time in...Reactions0reactionsComments1 comments
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've had doctors who tended to be brutally honest...Reactions0reactionsComments2 comments
Strange or Unexpected Lupus SymptomsLiving with lupus brings many challenges. Odd and unexpected symptoms arise. People with lupus may not be prepared for these strange symptoms. Sharing experiences is helpful for everyone. Members of...Reactions0reactionsComments9 comments
How to Improve Communication with Your DoctorIt's so important to advocate for yourself And ask questions about your condition and treatment options. There are ways you can speak with your doctor that gets them to answer...Reactions0reactionsComments2 comments