My First Ethical Question Mark with Chronic Illness CompensationI’ve been sharing my life with chronic illness openly online since nearly the moment my symptoms started happening. Sometimes it might look...reactions1comment
Things Out of Your ControlEver since I got my lupus diagnosis, my planning skills have excelled to the max - especially when it came to vacations...reactionscomments
Doodling My Way To Wellness Beyond LupusDoes anyone remember as a child how you would just sit and doodle? We would doodle during class getting out nervous energy...reactionscomments
How to Survive the Holidays with LupusThe winter holidays conjure images of snowmen and candy canes, presents wrapped under a tree or beside a Menorah, and plates piled...reactionscomments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I...reactionscomments
Losing Friends and Family Because of LupusOne of my most painful days with lupus wasn’t a day when my joints were swollen or when my fatigue was overwhelming...reactions17comments
Road Trip Essentials for Lupus WarriorsMy husband and I recently purchased a car so now I’ve been planning several road trips for the future. But, living with...reactionscomments
Later Menstrual Period and Long-Term Breastfeeding May Increase Lupus Risk in Black WomenA new study published in the journal Lupus has suggested that several factors related to reproduction may play a role in Black...reactionscomments
Study: Black People with Lupus May Have Higher Risk for Stroke and Heart DiseaseNew information sheds more light on the relationship between race and lupus and invites Black people with lupus to talk to their...reactions1comment
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like lupus can take years. Many people report their early symptoms were dismissed by doctors or...reactions1comment
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living...reactionscomments
Beyond the Flare: Managing Anxiety Around HealthMy heart skipped a beat. I took a deep breath and then the anxiety hit. I muttered to myself, “What’s wrong with...reactions3comments
How It Feels to Budget Your EnergyIn my life with lupus, my brain is keeping a constant tally of energy and how to "budget" my energy throughout the...reactions3comments
So When Are You Having Kids?Lately at every party (I guess because I’m married and 34 and childless) people ask, "so when are you going to have...reactions1comment
Cold Weather and Lupus: How To Be PreparedThe cold winter months are hard for many people, especially for those living with conditions like lupus. Sadly people who live with...reactions19comments
Can You Prioritize Physical Strength With Lupus Pain?One year ago, I began to struggle with pain and instability in my wrists. I had struggled with the pain of lupus...reactionscomments
Is Lupus Remission Possible?Lupus symptoms and flares are challenging. People living with lupus work toward better symptom management. Remission is a goal of many. Several...reactions5comments
My Neurological Lupus SymptomsComplications from lupus can result in neurological problems, that some may not understand if they are not familiar with how lupus. It...reactions2comments
A Man's Journey Through a Woman's DiseaseOne of the most pervasive myths is that lupus is solely a woman’s disease. As a man living with lupus, I navigate...reactions2comments
How I Disguise Steroid Weight GainAnyone who has ever taken steroids knows about their side effects all too well. Irritability, weird food cravings, and heartburn are just...reactions3comments
