The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself...reactions7comments
AllodyniaAllodynia is a type of pain. For people with allodynia, things that should not be painful cause severe pain. Allodynia is a...reactionscomments
5 Tips To Manage Lupus With WorkHaving lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of...reactions1comment
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've...reactions2comments
Strange or Unexpected Lupus SymptomsLiving with lupus brings many challenges. Odd and unexpected symptoms arise. People with lupus may not be prepared for these strange symptoms...reactions9comments
How to Improve Communication with Your DoctorIt's so important to advocate for yourself and ask questions about your symptoms, condition and treatment options. There are ways you can...reactions2comments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all...reactionscomments
Coping with Skin Photosensitivity and Heat Intolerance With LupusBefore I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when...reactions4comments
5 Date Ideas for People With LupusDate nights are a bit different now with my diagnosis. Before we used to just go out all spontaneous, at a spur...reactions1comment
Dear Lupus, I Want Myself BackMy personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was...reactionscomments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to...reactions11comments
Tips For Traveling With Chronic IllnessTraveling is stressful for anyone. Making sure you get everything in your bags. Even though you know you will inevitably leave something at...reactionscomments
How I Tell Men I Dated that I Have LupusA first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in...reactions2comments
My Experience With The Heart Complication, PericarditisHeart problems can be a big situation when it comes to having lupus. I was diagnosed with pericarditis. Pericarditis is the inflammation...reactionscomments
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me...reactionscomments
Lupus and the UnknownAfter I had COVID, I noticed that the right side of my face was a bit swollen. I informed my rheumatologist about...reactions4comments
No More Sorrys: Living Unapologetically with LupusAre you tired of apologizing for things that are completely out of your control? Well, you're not alone! On this lupus journey...reactionscomments
Thrush and LupusFor the past year, I seem to have been plagued by recurrent yeast infections. The main issue for me has been vaginal...reactions7comments
When Your Medical Team Keeps GrowingI can barely keep track of my doctors anymore. I know the important ones, of course, like my primary care and rheumatologist...reactionscomments
Tips For Traveling With MedicationsA vacation sounds so wonderful, so dreamy, like so much fun. Until you come back to reality. Remembering vacations aren’t so easy...reactions4comments
