Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all zap my energy. At home, I can use...reactionscomments
Coping with Skin Photosensitivity and Heat Intolerance With LupusBefore I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when I look back and remember how I would...reactions4comments
5 Date Ideas for People With LupusDate nights are a bit different now with my diagnosis. Before we used to just go out all spontaneous, at a spur of the moment and decide "let’s try this...reactions1comment
Dear Lupus, I Want Myself BackMy personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was perfect, even though my lupus diagnosis was 6...reactionscomments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to do household chores. After waking up exhausted and...reactions11comments
Tips For Traveling With Chronic IllnessTraveling is stressful for anyone. Making sure you get everything in your bags. Even though you know you will inevitably leave something at home. Usually something that’s important. Even after making...reactionscomments
How I Tell Men I Dated that I Have LupusA first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in your mind. Will they look like their online...reactions2comments
My Experience With The Heart Complication, PericarditisHeart problems can be a big situation when it comes to having lupus. I was diagnosed with pericarditis. Pericarditis is the inflammation of the pericardium. It usually feels like sharp...reactionscomments
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me was very sick and needed to go to...reactionscomments
Lupus and the UnknownAfter I had COVID, I noticed that the right side of my face was a bit swollen. I informed my rheumatologist about it and he said with flares this does...reactions4comments
No More Sorrys: Living Unapologetically with LupusAre you tired of apologizing for things that are completely out of your control? Well, you're not alone! On this lupus journey, I have spent way too much time saying...reactionscomments
Thrush and LupusFor the past year, I seem to have been plagued by recurrent yeast infections. The main issue for me has been vaginal thrush, although, I have suffered with oral thrush...reactions7comments
When Your Medical Team Keeps GrowingI can barely keep track of my doctors anymore. I know the important ones, of course, like my primary care and rheumatologist. I have an eye doctor and a dentist...reactionscomments
Tips For Traveling With MedicationsA vacation sounds so wonderful, so dreamy, like so much fun. Until you come back to reality. Remembering vacations aren’t so easy and you aren’t as free spirited as they...reactions4comments
Lupus Questions, Answers, and CommunityLupus can make you feel like you’re no longer in the driver’s seat. But the speed and landscape along the journey continue to change. You might not be diagnosed yet...reactionscomments
Dealing with Lupus, Sjogren's, and a Cancer DiagnosisI thought having a lupus diagnosis was hard. But, these last few weeks have really tested my strength. I had recently undergone many tests (an MRI and 2 biopsies) to...reactions12comments
I Was Told Lupus Was a Woman's DiseaseI was diagnosed with systemic lupus and lupus nephritis in 1995. I had no idea what lupus was nor had I ever heard of it. If this happened today, I...reactions13comments
What Does It Mean to Live With Lupus?Lupus is an autoimmune disease. This means parts of the immune system attack the body. It is challenging for the body to manage the internal assault. Life with lupus looks...reactions2comments
The Transformative Power of Being a Lupus AdvocateHave you ever wondered what it's like to be a lupus advocate? When I was first diagnosed, I never thought I would become an advocate for others. Knowing lupus is...reactions4comments
Building Self-Esteem While Battling LupusLet me tell you a story about a person called low self-esteem. They are kind of a downer, always feeling like they aren’t good enough and doubting their abilities. They’ve...reactions8comments