How I Became a Patient AdvocateDuring the first 4 years I was sick, I didn't tell anyone about my illness out of fear of rejection. Now, I write and speak about my illness openly. Here...Reactions0reactionsComments1 comments
Lupus Coloring Pages to Help Alleviate StressThink back to your childhood. Maybe you were home sick from school, or the weather kept you indoors. What was a surefire activity to keep you busy and entertained? It...Reactions0reactionsComments0 comments
The Importance of Advocating for YourselfSometimes it is so difficult to speak up for yourself during doctor visits. I have found it hard to get a word between all the information. It has even been...Reactions0reactionsComments2 comments
Anti-Inflammatory Kitchen Kit GiveawayThe Anti-inflammatory Kitchen Kit Giveaway is now closed. Thank you for your interest! We are recognizing Lupus Awareness Month with an extra-special giveaway. Diet and nutrition play a big role...Reactions0reactionsComments2 comments
Lupus Awareness Month: The Lupus Roller CoasterTime to kick off Lupus Awareness Month this May! Throughout the month, we will be focusing on highlighting the impact lupus has on daily life. Many people who aren't living...Reactions0reactionsComments0 comments
How My Appearance Has Changed Due to LupusAs we age, it's obvious that our physical appearance changes–it’s part of life. However, I have noticed, particularly within the last 5 years, how my body has changed a lot...Reactions0reactionsComments7 comments
When Should I Seek Medical Care?The last thing we want to do when we are sick, or hurt is going to the ER or urgent care. We see so many doctors, so the thought of...Reactions0reactionsComments5 comments
Lupus and My Medication JourneySince getting diagnosed with lupus in July 2017, I have been on a medication adventure. I learned early on that there was no one size fits all plan for people...Reactions0reactionsComments0 comments
When the Patient Becomes the CaregiverEarlier this year, one of my favorite songs, Ironic by Alanis Morrissette, became my reality. I was sitting in my home office one morning when Luca, my best friend, called...Reactions0reactionsComments1 comments
8 Tips To Overcome Scanxiety With LupusDealing with lupus, we have a team of doctors we see frequently. We have multiple labs and urinalyses, and some even have follow-up scans. Lupus can attack any part of...Reactions0reactionsComments2 comments
My Struggle With Insulin ResistanceI sat in my doctor’s office as the 1,000 grams of Solu-Medrol dripped down the clear IV tube and into my arm. Solu-Medrol looks like water, but I wasn’t fooled...Reactions0reactionsComments1 comments
My Lupus Flare TriggersI wanted to share my own personal experience of what tends to cause my lupus to flare up. This may be like what other lupus warriors can relate to or...Reactions0reactionsComments21 comments
Lupus Makes Me Feel LonelySometimes walking on this lupus journey can be so lonely. It sucks the life out of you and makes you feel ostracized from the ‘normal’ world. I have been in...Reactions0reactionsComments7 comments
What It’s Like to Have a Humble DoctorHumility is not a characteristic that I thought to look for in a doctor. It's not something I've found often, either. I never really thought about it or expected it...Reactions0reactionsComments0 comments
How I Cover My Dark Circles with MakeupLupus is an invisible illness. I don't walk with a limp, need a wheelchair, or show any of the typical physical signs most people associate with disability. My pain almost...Reactions0reactionsComments1 comments
Life After SepsisWhen you are in the hospital, all you can think about is going home and crawling into your bed, putting on your clothes or jammies, and loving your pets. You...Reactions0reactionsComments17 comments
Prednisone Side EffectsWhen I was first diagnosed with lupus, the Plaquenil alone was less effective than my rheumatologist wanted. So, he told me they would add prednisone and taper me off it...Reactions0reactionsComments13 comments
It's Scary to Tell People About My Lupus JourneyYou don’t look sick. Sigh, this is one of the hardest things to hear. Am I alone in getting mad every time I hear those words? As I fight for...Reactions0reactionsComments20 comments
4 Reflections From Years of Living With Chronic PainWhat health issue have you spent the most time seeking treatment, only to end up with the poorest results? For me, it’s my chronic neck pain. The list of things...Reactions0reactionsComments18 comments
Laboratory Markers for Lupus FlaresAre there any objective lab markers that can be checked when a flare of lupus is suspected? Are there any markers correlating with disease severity and progression in patients with...Reactions0reactionsComments11 comments