It Can Get Dark Inside a FlareI find it a little bizarre that an increase in disease activity is typically referred to as a flare or flare-up. Google’s English dictionary for flare includes definitions such as...Reactions0reactionsComments26 comments
My Latest Pulmonary Issues With LupusI recently had a follow-up visit with my pulmonologist. The first thing we did was my pulmonary function test and I was happy to see that my results were the...Reactions0reactionsComments5 comments
Healthcare Costs Greater for Those With Lupus NephritisLupus is a chronic (long-term) autoimmune disease. The disease is most common among women between the ages of 14 and 55. These are prime career-building years. Many people with lupus...Reactions0reactionsComments0 comments
Fighting FatigueThere is nothing like dragging through your day just trying to make it to your next moment. One of the hardest symptoms of lupus for me has been fatigue. Fatigue...Reactions0reactionsComments3 comments
What Can I Eat After a Kidney Transplant?Knowing what to eat after receiving a kidney transplant can be difficult. Diets during dialysis and before surgery may be very restrictive. After a kidney transplant, you may think you...Reactions0reactionsComments0 comments
Why I Tried Ketamine for My DepressionTreating depression can be a complicated journey. Not every medication works for every person, and the process of finding the right treatment can be grueling. People with treatment-resistant depression, or...Reactions0reactionsComments3 comments
Lupus and Pulmonary Function TestsWhen I was first diagnosed, I had various symptoms, and many of them related to my lungs. I had shortness of breath, sharp chest pain, and fluid around my lungs...Reactions0reactionsComments0 comments
Dealing With Life-Threatening Health IssuesI recently experienced many medical issues, a 7-day hospital stay, and being discharged on IV antibiotics 3 times a day for 6-8 weeks. More doctor appointments and visits from home...Reactions0reactionsComments3 comments
The Struggle of Getting Diagnosed With LupusIf you are struggling to get diagnosed, you are not alone. Most people search for answers for 7 years before they are diagnosed with lupus. The pre-diagnosis stage is one...Reactions0reactionsComments3 comments
Lupus Balance Between Exercise and RestIf I hear one more person tell me to move when I am in pain, I will scream! How many of you have said this to yourself? I know I...Reactions0reactionsComments5 comments
Coping With GriefSince becoming unwell on my lupus journey, I have struggled with stress. It seems that my body can't seem to handle it, and my nervous system goes into overdrive. This...Reactions0reactionsComments2 comments
Books and Movies About Lupus That Help Me CopeOne of the most discouraging parts of being diagnosed with lupus was that my friends and family had no idea what lupus even was. More well-known diseases, like cancer and...Reactions0reactionsComments3 comments
5 Ways To Help A Loved One With LupusWhen a family member or a friend gets diagnosed with lupus it may be hard to know how to react or what to do. I know when I got diagnosed...Reactions0reactionsComments0 comments
Migraines, Menstrual Cycles, and Lupus Flares: A Painful TrifectaI dread that time of the month. Lupus has made it even worse – both the dread and the experience. Some menstrual cycles are more painful or inconvenient than others...Reactions0reactionsComments2 comments
Lupus Specialist Appointments During PregnancyI only have a short time left before I deliver my second child. The doctor's visits have been easier, but I was finally able to meet my rheumatologist after not...Reactions0reactionsComments2 comments
What Is Neuropathy and How Is It Treated?People living with lupus usually describe their neuropathy as numbness and tingling, starting in the extremities like the hands and feet. Symptoms can progress over time and travel up the...Reactions0reactionsComments12 comments
New Test May Predict Heart Disease in People With LupusManaging their disease can be challenging and lifelong for people living with lupus. In addition to dealing with symptoms, they must also be mindful of the potential for complications, such...Reactions0reactionsComments1 comments
Pregnancy and LupusI have reached 7 months in my pregnancy, and my flare is still consistent. I have taken a break from social media platforms and only post when needed. I am...Reactions0reactionsComments1 comments
What Is Imposter Syndrome and How Can We Overcome It?Sometimes I feel like a fraud. Putting on these masks while battling lupus can be exhausting. In a world where you're expected to be perfect, it's easy to feel like...Reactions0reactionsComments4 comments
Purpura: When Small Blood Vessels Leak Blood Under the SkinIf you have been on blood thinners or have lupus, you are prone to bruises and scratches. I have experienced that a lot lately. People asked me how I got...Reactions0reactionsComments12 comments