The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people...reactions5comments
Is Lupus Remission Possible?Lupus symptoms and flares are challenging. People living with lupus work toward better symptom management. Remission is a goal of many. Several...reactions1comment
Examples of How I Use My Daily SpoonsHave you heard of the spoon theory? It started when Christine Miserandino was trying to explain to a friend what it’s like...reactions4comments
Has Your Doctor Ever Gaslit You?"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from...reactions11comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply...reactions1comment
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was...reactionscomments
Tips for a Vacation with Kids and LupusYears ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with...reactionscomments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types...reactions7comments
Methotrexate AccessMethotrexate is a common drug prescribed to people with inflammatory forms of arthritis and other autoimmune diseases. In an autoimmune disease, a...reactionscomments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a...reactionscomments
Money Woes and LupusIt's gotten so hard these days to look at my bank account. With the rising cost of everything, living in NYC plus...reactions2comments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within...reactionscomments
An Interview With a Registered Nurse About Treating Chronically Ill PatientsWhen I first met my sister-in-law Allison in 2012, I was impressed to hear she was a nurse. I always wanted to...reactions2comments
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming...reactions4comments
My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red...reactions3comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that...reactions2comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be...reactions11comments
6 Unexpected Experiences I Had With a Health CoachSince my health is compromised, I've resisted the idea of it being "coached." I have already sought help from several medical professionals...reactions4comments
How Journaling Changed My Lupus OutlookI have been journaling since I could write. It has always been a part of my life to get things out of...reactions2comments
Expressing Gratitude with LupusHaving to deal with lupus can be challenging at the best of times. It's not always easy to feel gratitude for anything...reactions4comments
