Money Woes and LupusIt's gotten so hard these days to look at my bank account. With the rising cost of everything, living in NYC plus doctors visits, medications, lab work, etc. It's really...reactions2comments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within the hospital. Roe vs. Wade was overturned, and...reactionscomments
An Interview With a Registered Nurse About Treating Chronically Ill PatientsWhen I first met my sister-in-law Allison in 2012, I was impressed to hear she was a nurse. I always wanted to hear about her job and respected her for...reactions2comments
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming overwhelming on the body. The skin is the...reactions4comments
My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red positive line! I had COVID-19! I live in...reactions3comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that I was taking for the first few years...reactions2comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be perfect in your lupus journey no matter what...reactions11comments
6 Unexpected Experiences I Had With a Health CoachSince my health is compromised, I've resisted the idea of it being "coached." I have already sought help from several medical professionals and feel I'm doing my best within my...reactions4comments
How Journaling Changed My Lupus OutlookI have been journaling since I could write. It has always been a part of my life to get things out of my head, especially in trying times in my...reactions2comments
Expressing Gratitude with LupusHaving to deal with lupus can be challenging at the best of times. It's not always easy to feel gratitude for anything when you're struggling emotionally or in a bad...reactions4comments
We Got Married!It gives me the creeps! No, I am not talking about blood being drawn from my elbow. Nor am I talking about a kidney biopsy. I am talking about the...reactions5comments
A Brain Inflammation Flare Made Me Forget What I Liked and DislikedIn 2014, I stood up after teaching a violin lesson one day and forgot how to walk. A severe episode of lupus cerebritis, or brain inflammation, followed and lasted for...reactions3comments
Dealing With a Breast Lump as Lupus PatientWith lupus, you become more aware of your health. You get to know your body and know what is "normal." One day, I was doing a self-check breast and noticed...reactions9comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactions2comments
Why I Love Summer Even With LupusThe winter months are hard on me. It's cold and dark, and the weather can be formidable. While I don't have Raynaud's, like some people with lupus, I still struggle...reactions11comments
Tips For Lupus FogHave you forgotten your glasses that are on your face? Maybe you've been talking on the phone and looking for it at the same time? Perhaps it's been a little...reactions24comments
Lupus and Personal FinanceMaking money when you are chronically ill can be a challenge. It is not easy maintaining a job while dealing with achy joints and fatigue. It can also be difficult...reactions7comments
Words I Invented for Fatigue Because the English Language is InadequateWhen I first got sick with lupus, I was not a stranger to feeling tired. Throughout high school and college, I had spent many late nights studying or practicing the...reactions10comments
Discrimination May Mean Life and Death: Being a Gay Man with LupusStruggling to fight bias is a common theme as a black gay man living with lupus. I was a shy teen, but lupus brought me out of my shell. Somehow...reactions8comments
Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were put on hold. I was only 27 when...reactions2comments