My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red positive line! I had COVID-19! I live in...Reactions0reactionsComments3 comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that I was taking for the first few years...Reactions0reactionsComments2 comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be perfect in your lupus journey no matter what...Reactions0reactionsComments11 comments
6 Unexpected Experiences I Had With a Health CoachSince my health is compromised, I've resisted the idea of it being "coached." I have already sought help from several medical professionals and feel I'm doing my best within my...Reactions0reactionsComments4 comments
How Journaling Changed My Lupus OutlookI have been journaling since I could write. It has always been a part of my life to get things out of my head, especially in trying times in my...Reactions0reactionsComments2 comments
Expressing Gratitude with LupusHaving to deal with lupus can be challenging at the best of times. It's not always easy to feel gratitude for anything when you're struggling emotionally or in a bad...Reactions0reactionsComments4 comments
We Got Married!It gives me the creeps! No, I am not talking about blood being drawn from my elbow. Nor am I talking about a kidney biopsy. I am talking about the...Reactions0reactionsComments5 comments
A Brain Inflammation Flare Made Me Forget What I Liked and DislikedIn 2014, I stood up after teaching a violin lesson one day and forgot how to walk. A severe episode of lupus cerebritis, or brain inflammation, followed and lasted for...Reactions0reactionsComments3 comments
Dealing With a Breast Lump as Lupus PatientWith lupus, you become more aware of your health. You get to know your body and know what is "normal." One day, I was doing a self-check breast and noticed...Reactions0reactionsComments9 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments2 comments
Why I Love Summer Even With LupusThe winter months are hard on me. It's cold and dark, and the weather can be formidable. While I don't have Raynaud's, like some people with lupus, I still struggle...Reactions0reactionsComments11 comments
Tips For Lupus FogHave you forgotten your glasses that are on your face? Maybe you've been talking on the phone and looking for it at the same time? Perhaps it's been a little...Reactions0reactionsComments24 comments
Lupus and Personal FinanceMaking money when you are chronically ill can be a challenge. It is not easy maintaining a job while dealing with achy joints and fatigue. It can also be difficult...Reactions0reactionsComments7 comments
Words I Invented for Fatigue Because the English Language is InadequateWhen I first got sick with lupus, I was not a stranger to feeling tired. Throughout high school and college, I had spent many late nights studying or practicing the...Reactions0reactionsComments10 comments
Discrimination May Mean Life and Death: Being a Gay Man with LupusStruggling to fight bias is a common theme as a black gay man living with lupus. I was a shy teen, but lupus brought me out of my shell. Somehow...Reactions0reactionsComments8 comments
Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were put on hold. I was only 27 when...Reactions0reactionsComments2 comments
Medical GaslightingGetting any type of diagnosis can be hard, but it's even harder when symptoms cannot be visibly seen but only felt by the patient. Sadly this is more common than...Reactions0reactionsComments37 comments
Here Comes the Sun and Big FlaresI went outside to feel the sun on my face. The energy from its rays was magnificent. The way the sun felt on my face was warm and comforting. I bathed...Reactions0reactionsComments15 comments
I Was Misdiagnosed 7 TimesThe first time I saw a doctor about my chronic illness, I was 22. I had just finished my first semester of graduate school. For months, my hair had clogged...Reactions0reactionsComments8 comments
Was There a “Before Lupus” Version of Me?For a long time, I saw myself as either "before" or "after" when it came to lupus. There was before the diagnosis in 2017 and then afterward. There was also...Reactions0reactionsComments6 comments