Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were put on hold. I was only 27 when...reactions2comments
Medical GaslightingGetting any type of diagnosis can be hard, but it's even harder when symptoms cannot be visibly seen but only felt by the patient. Sadly this is more common than...reactions41comments
Here Comes the Sun and Big FlaresI went outside to feel the sun on my face. The energy from its rays was magnificent. The way the sun felt on my face was warm and comforting. I bathed...reactions21comments
I Was Misdiagnosed 7 TimesThe first time I saw a doctor about my chronic illness, I was 22. I had just finished my first semester of graduate school. For months, my hair had clogged...reactions8comments
Was There a “Before Lupus” Version of Me?For a long time, I saw myself as either "before" or "after" when it came to lupus. There was before the diagnosis in 2017 and then afterward. There was also...reactions6comments
Finding Ways to Control Lupus SymptomsThis is a very intense topic to talk about. I have a lot of followers on Instagram that always ask about symptom control or the lack thereof. Their first thought...reactions1comment
Lupus and Mask-ShamingIt's been over 2 years since the start of the pandemic, and the world is starting to get back to normalcy. Restaurants, schools, airlines, and many more places have lifted...reactions6comments
I Feel Exposed: Being Chronically DryOne! Two! Three layers of lotion on my boy every morning. My friend Melissa and Ben always laughed as they watched me lather lotion on my face as if it...reactions13comments
Lupus Symptom BingoLupus can leave some people feeling out of control. You might experience flare-ups when symptoms worsen and other times when lupus symptoms are mild. This symptom bingo card is a...reactions14comments
Show Up for Yourself on Your Lupus JourneyOften, on our lupus journey, we forget about ourselves. We give so much to everyone in our lives. We are ultimately neglecting our own needs and desires. It's true. We...reactions2comments
Accepting I Have a DisabilityWhen I think of the word "disability," I often think of the universal symbol for disability: a simple blue picture of a person sitting in a wheelchair. Wheelchairs and other...reactions4comments
Lupus Advocacy: The Honest TruthAdvocacy for lupus can be overwhelming. Dealing with other people’s issues while battling your own can lead to advocacy burnout. Life as a lupus advocate is not easy. It is...reactions2comments
What I Learned From Lupus Advocates During Our Instagram Live EventI am continuously impressed by my fellow advocates here on Lupus.net. I enjoy reading their articles, and I'm encouraged when I learn about their life experiences with lupus. Recently, I...reactions2comments
5 Things I Learned From My First Surgery as an Autoimmune PatientHave you had surgery before? Until a few weeks ago, my answer was simply that I had my wisdom teeth removed as a teenager. Sure, that was technically surgery, but...reactions20comments
Are You Self-Gaslighting on Your Lupus Journey?Living with this chronic pain always has me questioning my body on my lupus journey. The chronic nature makes me more aware of every pain. I often find myself minimizing...reactions11comments
Therapy Is Not ScaryTherapy. The thought of going to talk to a stranger about your deepest darkest issues and traumas is daunting at best. But it is honestly so good and so therapeutic...reactions6comments
Self-Care and LupusThe World Health Organization defines self-care as: "the ability of individuals, families, and communities to promote health, prevent disease, maintain health, and cope with illness and disability with or without...reactions3comments
How I Beat Post-Exertional FatigueA month ago, I decided to change up my workout routine. Instead of my usual Pilates and light weight-lifting, I searched YouTube for workout videos and stumbled upon a beginner...reactions5comments
Soothing Self-Care Basket GiveawayThe Soothing Self-care Basket Giveaway is now closed. Thank you for your interest! To support 2 lucky community members in their lupus journey toward soothing self-care, we are giving away:...reactionscomments
Lupus Awareness Month 2022: Self-Care MattersMay is Lupus Awareness Month! While awareness is not limited to one month, all of May we will be sharing stories, starting conversations, and highlighting the importance of self-care for...reactions2comments