Retaining FluidMost people don’t know or will not understand how fluid retention starts, and also how you retain fluid. Well, my experiences have...reactions1comment
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I...reactions2comments
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've...reactions2comments
Dear Lupus, I Want Myself BackMy personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was...reactionscomments
The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself...reactions9comments
AllodyniaAllodynia is a type of pain. For people with allodynia, things that should not be painful cause severe pain. Allodynia is a...reactionscomments
When Your Medical Team Keeps GrowingI can barely keep track of my doctors anymore. I know the important ones, of course, like my primary care and rheumatologist...reactionscomments
I Was Told Lupus Was a Woman's DiseaseI was diagnosed with systemic lupus and lupus nephritis in 1995. I had no idea what lupus was nor had I ever...reactions13comments
Dealing with Lupus, Sjogren's, and a Cancer DiagnosisI thought having a lupus diagnosis was hard. But, these last few weeks have really tested my strength. I had recently undergone...reactions12comments
Lupus and the UnknownAfter I had COVID, I noticed that the right side of my face was a bit swollen. I informed my rheumatologist about...reactions4comments
When the Patient Becomes the CaregiverEarlier this year, one of my favorite songs, Ironic by Alanis Morrissette, became my reality. I was sitting in my home office...reactions1comment
Am I a Good Caregiver?With my mother having lupus, there have undoubtedly been times where I have had to step more into a caregiver role than...reactions1comment
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me...reactionscomments
My Experience With The Heart Complication, PericarditisHeart problems can be a big situation when it comes to having lupus. I was diagnosed with pericarditis. Pericarditis is the inflammation...reactions2comments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to...reactions11comments
Travel Tips For Lupus PatientsTraveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of...reactionscomments
My Medication Travel GuideLike many of you, I am on a constant search to organize my medications, auxiliary medications, braces, and many other items that I...reactions1comment
9 Tips For Traveling Overseas With LupusTraveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on...reactions3comments
Tips For Traveling With Chronic IllnessTraveling is stressful for anyone. Making sure you get everything in your bags. Even though you know you will inevitably leave something at...reactionscomments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all...reactionscomments
