Using Your Love Language to Cope with LupusIt can be hard to work on self-care for yourself in between pain and life. Self-care is anything that will make your life better and meet your needs. After reading...Reactions0reactionsComments7 comments
Life After the Pandemic Mandates are Lifted as a Lupus PatientI know tons of people are sick of hearing COVID all over the news and are now rejoicing that the mask mandates and vaccine mandates have been lifted in most...Reactions0reactionsComments1 comments
Lupus and RelationshipsI wanted to talk about relationships in my latest article, as I feel it is something that can have a huge impact on lupus patients. I have experienced both ends...Reactions0reactionsComments1 comments
How I Handle Housework With LupusLike many lupus patients, I don't have as much energy as a healthy person my age. I sleep 10-12 hours a night yet still feel tired every day. Between balancing...Reactions0reactionsComments4 comments
3 Things that Saved My Sanity and My LifeOne of the drawbacks of being chronically ill is the sheer number of doctors you have to see to manage your care. That alone can make anyone feel lost and...Reactions0reactionsComments4 comments
What Lupus Actually Looks LikeOftentimes people who do not have lupus think they know what lupus is. They may know a friend of a friend that has lupus. They base their view on just...Reactions0reactionsComments2 comments
Lupus Taught Me About CreativityWhen I was a child, my brother was the creative one in the family. From a young age, he loved to draw and paint. Over days and weeks, a pencil...Reactions0reactionsComments4 comments
Educating Others and Rising Above StigmaSometimes it's not that easy to walk around with an autoimmune disease in the world because no one understands. Just recently, this beautiful woman and I had an intellectual conversation...Reactions0reactionsComments4 comments
Take the Health and Media Habits Survey! *Now Closed*The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
How Lupus Made Me Fall in Love with Thrift ShoppingWhen I was at my sickest with lupus cerebritis, my mother-in-law, who had moved in to take care of me, introduced me to thrifting. My Other Mother, as I call...Reactions0reactionsComments9 comments
The Hormone Connection to LupusI’ve always been interested as to why there is such a higher ratio of women who get diagnosed with lupus than men. Research suggests that 1 in 10 people living...Reactions0reactionsComments3 comments
Getting Through Lupus Fog to a Clear MindI've been looking for my glasses while they were on my face. Searching high and low for my phone as I was talking on it. The scary moments when I...Reactions0reactionsComments11 comments
Life After My Lupus DiagnosisGetting diagnosed with lupus has changed my life forever. There is so much I wish I could do that I can't or won't (do as frequently) just because it could...Reactions0reactionsComments7 comments
5 Creative Hobbies or Outlets For People with LupusStill haven’t found a creative outlet? Here are more ideas to try! (Energy Level: Moderate) When I was a young child, my mother used to sew dresses and jumpers for...Reactions0reactionsComments1 comments
Experiencing Social Anxiety With LupusI have previously written about the effects depression can have on us lupies but I wanted to talk about another aspect of mental health that can also affect us. It...Reactions0reactionsComments2 comments
How Lupus Changed My Approach to Setting Life GoalsI've always been a Type A, goal-oriented person. In the weeks leading up to New Year's Day every year, I research the best type of planner, then fill it with...Reactions0reactionsComments3 comments
Facing My Covid Fear and Moving Forward"I cannot walk out of the house this sick." Though fully vaccinated and being personally vigilant about COVID precautions in my home, I had a single weak link in my...Reactions0reactionsComments3 comments
What Is the Connection Between Lupus and PTSD?Many things can affect whether a person gets lupus or not. Other health conditions are among them. One condition that can increase the risk of lupus is post-traumatic stress disorder...Reactions0reactionsComments15 comments
Making It All Work: Consider Your Health When Starting a New JobI'm pacing around the house, saying, "will they call?" My family keeps calling to check on the status of my interviews. "Should I have told that many people? What if...Reactions0reactionsComments4 comments
When Symptoms Progress to DamageApproximately 1 year ago, I had to pause the first immunosuppressant I’ve ever taken for lupus: azathioprine. After 3 years on that medication, a specialist told me it was doing...Reactions0reactionsComments2 comments