Standing Ovation To Our Support TeamDealing with lupus or any chronic illness is difficult and can be even more difficult without the proper support team. There is not enough credit in the day to say... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments1 comments
Depression Should Not Be a Dirty WordOn the outside, you look like you have everything together. You are back on your own feet for the first time in 5 years. You have a new apartment with new... By Amber Blackburn, RN4 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus Symptom TrackerMany aspects of lupus are outside of your control. You might experience flare-ups when symptoms worsen and periods when lupus symptoms are mild. Your rheumatologist might ask that you keep... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments2 comments
4 Creative Outlets for People Living With LupusAccording to Brene Brown (author, social scientist, and researcher), "Unused creativity is not benign. It metastasizes. It turns into grief, rage, judgment, sorrow, shame." I have found these words to... By Meghan Bea2 min readBookmark for laterReactions 0 reactions Comments2 comments
What Lupus Has Taught MeAt times it feels like I can't speak about anything but the pains of lupus. I get stuck in the pattern of focusing on the hurt lupus can bring. Oftentimes... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments2 comments
Lupus In America Data Reveal Struggles with WorkWorking with a chronic condition is difficult. That is an understatement. For some people living with lupus, it is impossible. Our 2nd Lupus In America survey gave us a snapshot... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments5 comments
Antiphospholipid SyndromeAntiphospholipid antibody syndrome can be a tricky condition when it comes to dealing with lupus. Why? It occurs when your immune system mistakenly creates antibodies that make your blood much... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments5 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Taming My She-wolf: Life with Lupus and the Holiday AftermathAnd so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to pounce. I ignored her, and I had way... By Cay Bermingham4 min readBookmark for laterReactions 0 reactions Comments2 comments
How To Accomplish Goals Despite LupusOne of the most painful parts of getting sick with lupus was having to let go of my goals and plans. I mourned the loss of the life I had... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments4 comments
Loving Yourself Beyond Lupus"To be beautiful means to be yourself. You don't need to be accepted by others; you need to accept yourself." –Thich Nhat Hanh It can be hard to accept and... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments8 comments
Travel Tips For Lupus PatientsTraveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of stress. Thankfully I love planning and swear I... By Geri Rodriguez4 min readBookmark for laterReactions 0 reactions Comments0 comments
How Are You Feeding Your Mind As You Battle Lupus?Lupus can really play tricks with our minds. It can have us thinking that we can't do anything in our lives. Sometimes it even hits us with anxiety and paranoia... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments7 comments
Cabin Trip Lupus Flare UpSo, I went on a trip to the cabin for my mother’s birthday. I noticed many things that my mother and I have in common dealing with our lupus. I... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments4 comments
Covid Vaccines For the ImmunocompromisedI got my 2 doses of the Pfizer vaccine in April 2021. When I became eligible for my booster shot it was during the time Omicron was all over the... By Geri Rodriguez2 min readBookmark for laterReactions 0 reactions Comments0 comments
Survey: 8 in 10 Wish They Could Have Managed Lupus DifferentlyWe all have those moments where we look back and wish we could change something from a particular moment in time. People living with lupus who took our 2nd Lupus... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Fear, Joy, and Sadness of Missing OutThe concept of FOMO (the fear of missing out) has been circulating for a while and has helped many people put a name on the anxiety they may feel about... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments4 comments
What To Expect When You Take ImmunosuppressantsLupus is an autoimmune disease. This means that instead of attacking invading germs, the body's immune system attacks its own skin and organs. Often, this assault by the immune system... By Meghan Bea2 min readBookmark for laterReactions 0 reactions Comments6 comments
About 6 in 10 Lupus Patients Constantly Have to Explain the ConditionIt can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to simplified answers to save time and energy. Our... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Restless Legs Syndrome and the Lupus LinkI must've lost count of the list of symptoms that lupus has given me. I often feel like some of them have a cycle. I can be experiencing pain in... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments4 comments