9 Tips For Traveling Overseas With LupusTraveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on seeing our beautiful planet as long as we...Reactions0reactionsComments3 comments
5 Practical Tips to Manage AnxietyAnxious much? Anxiety can be so overwhelming as you battle lupus. It’s something so many of us deal with, especially since the pandemic took over our lives. An emotion that...Reactions0reactionsComments12 comments
What Happens When a Family Member Gets COVID?A few days after returning home from a family vacation, my dad started to feel ill. His throat was itchy, and he had a slight fever. I immediately grabbed a...Reactions0reactionsComments1 comments
My Deep Vein Thrombosis ScareI wanted to write about an experience I had recently, which at the time was very frightening, and it made me think a lot about how delicate our health is when...Reactions0reactionsComments3 comments
My 5-Year Lupus Diagnosis AnniversaryI cannot believe it’s been 5 years since I officially got my diagnosis. My lupus journey has been an emotional roller coaster, and I cannot believe these past few years...Reactions0reactionsComments2 comments
The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people think lupus affects your skin. I feel like...Reactions0reactionsComments5 comments
Is Lupus Remission Possible?Lupus symptoms and flares are challenging. People living with lupus work toward better symptom management. Remission is a goal of many. Several of the 70 questions in the 2nd Lupus...Reactions0reactionsComments1 comments
Examples of How I Use My Daily SpoonsHave you heard of the spoon theory? It started when Christine Miserandino was trying to explain to a friend what it’s like to live with lupus on a daily basis...Reactions0reactionsComments4 comments
Has Your Doctor Ever Gaslit You?"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from your family, and you must be homesick." Nearly...Reactions0reactionsComments11 comments
2 Ways of Explaining Lupus Fatigue to Others"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new friend over dinner. He nodded, then looked confused...Reactions0reactionsComments7 comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply for job applications, and lupus is now mentioned...Reactions0reactionsComments1 comments
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was in April. It was now a couple of...Reactions0reactionsComments0 comments
Tips for a Vacation with Kids and LupusYears ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with them for many reasons, but mainly because I...Reactions0reactionsComments0 comments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types of them, but most days, I find that...Reactions0reactionsComments7 comments
Methotrexate AccessMethotrexate is a common drug prescribed to people with inflammatory forms of arthritis and other autoimmune diseases. In an autoimmune disease, a person's immune system mistakes healthy cells for foreign...Reactions0reactionsComments0 comments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a letter to your federal legislators. These legislators represent...Reactions0reactionsComments0 comments
Money Woes and LupusIt's gotten so hard these days to look at my bank account. With the rising cost of everything, living in NYC plus doctors visits, medications, lab work, etc. It's really...Reactions0reactionsComments2 comments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within the hospital. Roe vs. Wade was overturned, and...Reactions0reactionsComments0 comments
An Interview With a Registered Nurse About Treating Chronically Ill PatientsWhen I first met my sister-in-law Allison in 2012, I was impressed to hear she was a nurse. I always wanted to hear about her job and respected her for...Reactions0reactionsComments2 comments
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming overwhelming on the body. The skin is the...Reactions0reactionsComments4 comments