6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course...reactions2comments
Looking Back With LupusOver the last year, our community has navigated pain, fatigue, work challenges, medication side effects, support needs, mental health challenges, and more...reactions2comments
Tips For Traveling With MedicationsA vacation sounds so wonderful, so dreamy, like so much fun. Until you come back to reality. Remembering vacations aren’t so easy...reactions4comments
My First Benlysta InfusionAt 7:45 a.m., I approached the medical staff stationed outside my doctor's office to have my temperature taken. My husband had just...reactionscomments
My Benlysta ReviewWho would have known that a drug that works for many others would start with me so badly? I tried Benlysta, and...reactions1comment
I Feel Exposed: Being Chronically DryOne! Two! Three layers of lotion on my boy every morning. My friend Melissa and Ben always laughed as they watched me...reactions13comments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life...reactions4comments
Letter to Family and FriendsDear Family and Friends, It’s me, your lupus warrior, giving my perspective as to what I need in my battle to beat...reactions8comments
5 Ways To Help A Loved One With LupusWhen a family member or a friend gets diagnosed with lupus it may be hard to know how to react or what...reactionscomments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion...reactionscomments
5 Tips To Manage Lupus With WorkHaving lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of...reactions1comment
The Connection Between Lupus and Non-Hodgkins LymphomaWhen I got my lupus diagnosis, I never imagined that I would also get diagnosed with cancer. Especially at the young age...reactionscomments
Juggling Different Health Challenges in this Lupus CircusAs I stand in a lupus whirlwind of healthcare appointments, medication schedules, and symptom management strategies, I have become fully aware of...reactionscomments
Not Sorry To See You Go 2023I feel like I am not alone happily saying ADIOS 2023. If last year was a person, I feel quite confident that...reactionscomments
Juggling New Symptoms and A New JobWhen being a mother with systemic lupus erythematosus (SLE), discoid lupus and a new job, it can be overwhelming. I am currently...reactions1comment
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue...reactions11comments
4 Reasons To Seek A Second OpinionYou’ve been waiting MONTHS for an appointment with a rheumatologist. During those months you’ve diagnosed yourself with every possible rheumatic disease. The...reactions8comments
Health Literacy and LupusLupus is a chronic illness that affects multiple organs and can require advanced therapies. Because it is a complex illness, people with...reactions1comment
Pants That Covered My Pain and Brightened My FutureI crave food! I crave food! I crave food all of the time! Whenever my rheumatologist and I discuss a regimen of...reactions1comment
The Impact of Holidays on Individuals with LupusBefore my lupus diagnosis I use to love when the BER months came around: SeptemBER, OctoBER, NovemBER, DecemBER. The BER months signified...reactions2comments
