When Medication Side Effects Leave Lasting ScarsTreating lupus can require so many steps that sometimes I feel like my appointments and never-ending phone calls to medical offices should count toward my daily workout goal. It's that...reactions8comments
To Move or Not To Move?You would think a simple question had a simple answer. But, there are so many factors to think about, especially when you have been diagnosed with lupus. Living in NYC...reactionscomments
Recent Doctor's AppointmentMy recent doctor's appointment with my rheumatologist was remarkably interesting. She was my new doctor and the first time I contacted her was through video chat because she had covid...reactionscomments
Research Reveals Potential New Noninvasive Lupus TestReceiving a diagnosis for systemic lupus erythematosus (SLE) can take about 6 years after symptoms start. This is because SLE is difficult to diagnose. Doctors rely on several tests, symptoms...reactionscomments
9 Tips For Traveling Overseas With LupusTraveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on seeing our beautiful planet as long as we...reactions3comments
5 Practical Tips to Manage AnxietyAnxious much? Anxiety can be so overwhelming as you battle lupus. It’s something so many of us deal with, especially since the pandemic took over our lives. An emotion that...reactions12comments
What Happens When a Family Member Gets COVID?A few days after returning home from a family vacation, my dad started to feel ill. His throat was itchy, and he had a slight fever. I immediately grabbed a...reactions1comment
My Deep Vein Thrombosis ScareI wanted to write about an experience I had recently, which at the time was very frightening, and it made me think a lot about how delicate our health is when...reactions3comments
My 5-Year Lupus Diagnosis AnniversaryI cannot believe it’s been 5 years since I officially got my diagnosis. My lupus journey has been an emotional roller coaster, and I cannot believe these past few years...reactions2comments
The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people think lupus affects your skin. I feel like...reactions5comments
Is Lupus Remission Possible?Lupus symptoms and flares are challenging. People living with lupus work toward better symptom management. Remission is a goal of many. Several of the 70 questions in the 2nd Lupus...reactions1comment
Examples of How I Use My Daily SpoonsHave you heard of the spoon theory? It started when Christine Miserandino was trying to explain to a friend what it’s like to live with lupus on a daily basis...reactions4comments
Has Your Doctor Ever Gaslit You?"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from your family, and you must be homesick." Nearly...reactions11comments
2 Ways of Explaining Lupus Fatigue to Others"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new friend over dinner. He nodded, then looked confused...reactions7comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply for job applications, and lupus is now mentioned...reactions1comment
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was in April. It was now a couple of...reactionscomments
Tips for a Vacation with Kids and LupusYears ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with them for many reasons, but mainly because I...reactionscomments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types of them, but most days, I find that...reactions7comments
Methotrexate AccessMethotrexate is a common drug prescribed to people with inflammatory forms of arthritis and other autoimmune diseases. In an autoimmune disease, a person's immune system mistakes healthy cells for foreign...reactionscomments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a letter to your federal legislators. These legislators represent...reactionscomments