Lupus Awareness MonthIf you could craft the most helpful lupus awareness month, what type of activities would you include?...Reactions 0 reactions Comments0 replies
Problem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions 0 reactions Comments89 repliesTreatment
Triggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions 0 reactions Comments72 repliesFatigueButterfly RashSun Sensitivity
Chronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments19 repliesSymptoms
Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments6 repliesDiagnosisAwareness
Relatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments41 repliesCopingJoint PainSymptoms
Brain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions 0 reactions Comments7 repliesJoint PainFatigueSymptoms
Feeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions 0 reactions Comments79 replies
Doctor CareMy rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or Hydroxycloroquine so all I have is the Cell-Cept...Reactions 0 reactions Comments3 repliesTreatment
Staying UpliftedWhat do you all do to stay uplifted? How do you combat the depression that can come with dealing with lupus? ~Racquel~ lupus.net team member...Reactions 0 reactions Comments40 repliesDepression