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Read conversations, start a discussion, and connect with others about Lupus.

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Recovery After holidays

What are your recovery techniques after the holiday? What do you do to get back to a normal routine?...

The Wicked Movie

I am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers, I can totally identify with Elphaba. (Wicked Witch...

Holiday Tips

Well the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Lupus Life Hacks

Are there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...

Change on seasons

How do you all handle the changing seasons? The weather can definitely affect our bodies so how have you all learned to combat any issues that come along?...

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