New to thisSorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....Reactions0reactionsComments139 repliesTips & AdviceCoping
Disbelief It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...Reactions0reactionsComments1 repliesCopingSymptoms
Lupus Awareness MonthIf you could craft the most helpful lupus awareness month, what type of activities would you include?...Reactions0reactionsComments0 repliesCoping
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions0reactionsComments43 repliesAwarenessCopingFriends & Family
My body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions0reactionsComments34 repliesJoint PainCopingSymptoms
Know your triggers?Do you know your flare triggers? If so, what things are triggering flares for you?...Reactions0reactionsComments7 repliesCopingSymptoms
How do you cope when you are flaring but you have obligations?Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...Reactions0reactionsComments15 repliesCoping
My diagnosis 24 years agoMy diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...Reactions0reactionsComments4 repliesDiagnosisCoping
Chemotherapy Tomorrow I start my first round of chemo. Anyone else had this to try and get into remission? How did you feel after?...Reactions0reactionsComments1 repliesCoping
Type 1 Diabetes & Lupus?Do any of you also have Type 1 Diabetes? What Lupus treatments work for you that don’t mess with your blood sugars? Has anyone previously had JRA? Also, is anyone...Reactions0reactionsComments14 repliesCoping