Fatigue!There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...reactions1replyFatigueCoping
Hello!Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...reactions4repliesBrain FogCopingAnxiety
Say it to yourselfIf you could tell your pre-diagnosis self something that can help you today, what would it be?...reactions3repliesCopingTips & Advice
Recovery After holidaysWhat are your recovery techniques after the holiday? What do you do to get back to a normal routine?...reactionsrepliesCopingTips & Advice
The Wicked MovieI am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers, I can totally identify with Elphaba. (Wicked Witch...reactions5repliesTips & AdviceCoping
Holiday TipsWell the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...reactions3repliesCoping
Keeping personal journal to learn about flaresI was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...reactions3repliesTreatmentCoping
CopingWhat’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...reactions3repliesCoping
Lupus Life HacksAre there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...reactions8repliesCoping
Change on seasons How do you all handle the changing seasons? The weather can definitely affect our bodies so how have you all learned to combat any issues that come along?...reactions2repliesCoping