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Read conversations, start a discussion, and connect with others about Lupus.

Coping

New autoimmune disease I can't do this anymore. Im tired of the fight i spend more time to bed then not. Just diagnosed with another very rare autoimmune disease colongenous...

Lupus Funnies

I had to laugh at myself looking for my glasses while they are on my face while talking on my phone telling the person I was talking to I can't...

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...

Unwanted Lupus Warrior Promotion

Hmmm!! Who would ever thought that I would be living a life as a Lupus Warrior who has been diagnosed almost three years. This new position has not been easy...

Breathing

Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...

New to this

Sorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

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