CellceptMy Provider just prescribed me Cell Cept. Has anyone ever tried this drug and did it help?...reactions9repliesSide EffectsTreatment
A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...reactions9repliesResearch & Clinical TrialsTreatment
Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...reactions45repliesSide EffectsSleepTreatment
Scared to Start BenlystaHI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...reactions6repliesTreatment
Face Symptoms and Steroid Side-effectsThis post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...reactions2repliesSide EffectsSymptomsTreatment
Methotrexate or Imuran for LupusI was recently prescribed Methotrexate to bring my Lupus and Arthritis under control. Really not liking the choice of taking a chemo drug. Does it really work and does it...reactions14repliesTreatment
BenlystaHi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...reactions2repliesSymptomsTreatment
My doctor wants me to discontinue PlaquenilI am a 66 year old female and 6 years ago I went to a Rheumatologist for the first time. My symptom began as pain in my hands which I...reactions6repliesTreatment
Inflamed They took me off steroids after 13 yrs. Been 3 months now. Lupus blood work is good. But my body is so very inflamed. Hard to even dress myself. When...reactions2repliesTreatment
Plaquenil and mylar rashHello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...reactions4repliesButterfly RashTreatment