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Read conversations, start a discussion, and connect with others about Lupus.

A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?

Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

Scared to Start Benlysta

HI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...

Face Symptoms and Steroid Side-effects

This post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...

Methotrexate or Imuran for Lupus

I was recently prescribed Methotrexate to bring my Lupus and Arthritis under control. Really not liking the choice of taking a chemo drug. Does it really work and does it...

Benlysta

Hi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...

My doctor wants me to discontinue Plaquenil

I am a 66 year old female and 6 years ago I went to a Rheumatologist for the first time. My symptom began as pain in my hands which I...

Inflamed

They took me off steroids after 13 yrs. Been 3 months now. Lupus blood work is good. But my body is so very inflamed. Hard to even dress myself. When...

Plaquenil and mylar rash

Hello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...

Plaquenil

Should a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...

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