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Read conversations, start a discussion, and connect with others about Lupus.

My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Recovery After holidays

What are your recovery techniques after the holiday? What do you do to get back to a normal routine?...

The Wicked Movie

I am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers...

Holiday Tips

Well the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

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