Stories

Lupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...

After living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine...

Last year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the...

22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it...

I was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in...

I was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be...

I was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up...

My name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with...

About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when...

I was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told me I had 5 years to live. After...

I've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I was able to have one child. I have...

Hi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at 1st I was angry & disappointed with the...

For at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints were so inflamed that my hands would sometimes...

In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss fatigue. I had no place to put this...

Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway to find more joy in my life and...

My name is Kendra and I got lupus when I was 11 years old I am in remission now but still have my ups and downs but I fight it...

I've had SLE lupus since 1999 and received the news that I have MGUS (monoclonal gammopathy of undetermined significance) on 6/6/2017. When I read your feature story, I was glad...

Lupus is not a disease that you see. It reminds you it’s there like an ‘invisible enemy'. It ravages your body in ways you can never explain. A winding river...

I started having problems when I was 26 years old. I was diagnosed with fibromyalgia finally at 38. Then 6 years later I was diagnosed with Rheumatoid arthritis, during this...

I was found out I had Lupus Nephritis in 2015. Since then I have had my ups and downs. This year has been my worst, or maybe I am just...