My Lupus StruggleI've had Lupus since 1989. I lost a baby because of it. That's when I found out I had Lupus. I've had quite a few flares. In 2020, I had...reactions1comment
Fighting for AnswersIt's been 26 years since I was first told I might have lupus, and I still don't have a definite diagnosis. Because I have periods where I am fine, people...reactions7comments
The Never-Ending StruggleI was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It took my nursing job, my mobility (in a...reactions1comment
Tired Nurse WarriorI was diagnosed in 1994, the same year I graduated from nursing school. I have been living with multi-system involvement- most recently the death of my right kidney and more...reactions3comments
Too Tired TodayI am a mom to 7 humans. Three that are under 13 years old. One has Down syndrome. He has the mind of a 3-year-old, is non-verbal, and is very...reactions2comments
Confused and ExhaustedI was adopted at 3 days old. My adoptive mother never told me any information and was quite touchy about the subject. I'm now 54 with children and grandchildren and...reactions7comments
Lupus Is Killing MeI was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many...reactions6comments
By the NumbersI have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to...reactions1comment
Gotta Keep FightingI was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to...reactions3comments
Lupus Changed How I Saw MyselfI was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body...reactions7comments
Missed ChancesJust read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims...reactions2comments
What Lupus Has Taught MeLupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...reactions2comments
Managing with LupusAfter living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine...reactions3comments
My Diagnosis Was an Unexpected SurpriseLast year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the...reactions1comment
22 Years and Still Counting...22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it...reactions3comments
LupiesI was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in...reactions1comment
This Lupie LifeI was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be...reactions3comments
Becoming a Lupus WarriorI was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up...reactionscomments
My Lupus ExperienceMy name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with...reactionscomments
So I'm Not a Hypochondriac...About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when...reactionscomments
