Stories

I was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told me I had 5 years to live. After...

I've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I was able to have one child. I have...

Hi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at 1st I was angry & disappointed with the...

For at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints were so inflamed that my hands would sometimes...

In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss fatigue. I had no place to put this...

Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway to find more joy in my life and...

My name is Kendra and I got lupus when I was 11 years old I am in remission now but still have my ups and downs but I fight it...

I've had SLE lupus since 1999 and received the news that I have MGUS (monoclonal gammopathy of undetermined significance) on 6/6/2017. When I read your feature story, I was glad...

Lupus is not a disease that you see. It reminds you it’s there like an ‘invisible enemy'. It ravages your body in ways you can never explain. A winding river...

I started having problems when I was 26 years old. I was diagnosed with fibromyalgia finally at 38. Then 6 years later I was diagnosed with Rheumatoid arthritis, during this...

I was found out I had Lupus Nephritis in 2015. Since then I have had my ups and downs. This year has been my worst, or maybe I am just...

I was diagnosed with SLE Lupus 15 years ago. Since then, I have been diagnosed with Fibromyalgia, Sjogrens, Raynauds and this past November, tests showed my Thyroid is having problems...

March 2020 was the last time I worked as a critical care nurse. Covid came knocking on our doors. Because of my age, 72, my nursing director felt I should...

2015, the year Discoid Lupus and Subacute Cutaneous Lupus covered my torso and arms in lesions, many of which got infected. The same year, Rheumatoid Arthritis struck. The latter wasn’t...

After having three babies in three years, I was exhausted. Physically, I’d been through a lot of changes, and emotionally, it was a lot of change for me. I was...

I was diagnosed 28 years ago when I gave birth to my youngest child. After I had her I felt off. I couldn’t lift a brush to brush my hair...

I've had Lupus since 2005. It went into my kidneys and now I'm on dialysis. Soon I'll be looking for a Kidney Transplant. I have potential donors, the problem is...

I just joined Lupus.net today. I actually have both Lupus and RA. I have had RA since 2004 and had to retire from nursing in 2017, as RA started really...

I essentially have had lupus for 42 years. I was 30, pregnant with my youngest daughter when they first questioned systemic lupus due to 2 daughters born 10 weeks early...

I joined this forum because of the benefits of taking a variant in the B-3 vitamin group that my friend had a good experience with. The vitamin is "nicotinamide riboside...