Stories

I was diagnosed in 1979 after about 6 months of unexplained symptoms and am grateful to have had a family doctor who was an incredible diagnostician. Some of my friends...

Most might have read my story, not gonna rewrite that... But after a long 6 months, I am finally released from both surgeon (feeding tube doctor) and cancer doctor, scan...

I started having symptoms of SLE in 2016. I was just 16 at the time. In the beginning, I had mild joint pain and a horrendous case of scleritis, which...

It began with fatigue and pain right after my son was born, and my doctor told me it was postpartum depression and started medicine for it. Since I was depressed...

I was diagnosed with SLE Lupus in 1997, at a young age. It impacted my life very hard but I fought through it consistently. I even held down a job...

One time that still stands out to me is when it had only been a few months when I was told I had Lupus. I was shopping with a dear...

Let me start out by saying I was a late bloomer. I got my first period just one week before my 15th birthday. Now, you're probably wondering what that has...

Well, I have had Lupus for 35 years. My daughter was 10 when I was diagnosed I went to my primary care doctor because I was so tired and in...

I am waiting to see a rheumatologist to get the official diagnosis for Lupus and Sjögren Syndrome and have already been diagnosed with fibromyalgia. I am 46 years old and...

Light bulb went off! A couple weeks ago I finally gave in and started researching what issues I have then everything made sense. Looking back I have had symptoms of...

I was diagnosed when I was 20, and I am now only still 21, so this is all very new to me and I’m finding it hard to navigate through...

I been struggling with lupus since 1986. It has been tough with the pain, swelling, and information going into hospital with my breathing, and coming home with an oxygen machine...

I've learned to deal with so much discomfort in so many physical ways, that now my mantra is "it will get better", even if I just tell myself that to...

I'm always in so much pain and I hate when my family asks "what hurts?" I don't even know where to start, so I usually just say everything. If I...

My journey started back in high school. I got an incredibly mild case of mono. I didn’t even miss a day of school for it! But then I never got...

My daughter was diagnosed at age 15! She is now 30 years old! She would just lay on the floor and cry! As a mother, it would crush me that...

I always felt like something was off. From always being more tired than others, or years of kidney problems that no one could figure out, to even my terrible pregnancies...

In 2011 I was in Kansas and hurt my back getting in a boat. I was sunburned so badly. By August that year, I got hurt again and kicked in...

Most likely I was diagnosed with Lupus back in 2009 after I was nearly killed from a horrible Motorcycle wreck, that another person in a car had caused. I was...

I was diagnosed February 2021. My family does not understand lupus and won't read about it. They think I complained about daily pain. They think something can be done. I...