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Read conversations, start a discussion, and connect with others about Lupus.

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Lupus symptom or not?

Just curious… does anyone else have times when their tongue is painful, like it’s been burned? When this happens there are no...

SO TIRED OF LUPUS

Having too many infused days of the drain lupus has taken on my mind and body...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Recently Diagnosed. Constant Wrist Pain - Any Help?

I'm a Nigerian recently diagnosed with lupus. I have this constant wrist pain that has refused to go away despite taking NSAIDs...

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist...

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