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Read conversations, start a discussion, and connect with others about Lupus.

I Feel Like I Have Lupus but Bloodwork is "Normal"

Hey everyone, I feel so lost at the moment and feel so frustrated, overwhelmed and down. Since October my hands and wrists have been hurting so much and randomly go...

Covid long hauler and lupus

I am an 80 year old man being tested now for lupus, and the probability is high that I have the disease. I'm a covid long hauler, and thought the...

Lupus Awareness Month

What has been the one thing you’ve learned during lupus awareness month, so far, that you didn’t know before?...

What is the first visit like after Lupus Diganosis

What can I expect for the first appointment to my Rheumatologist First...

It's Giveaway Time!

One lucky winner will receive a pair of Warmies microwavable slippers! Get more details about the giveaway here.

First Rheumatology appointment

Hi everyone! I have my first Rheumatology appointment tomorrow- I had to wait over a year for this- so it been a long wait- (Canada universal medical ;)). I am...

What is wrong with me?

44 year old female. Seeking diagnosis. Long post warning. Looking for someone who has experienced similar symptoms/blood work. 1/23: Blood work (Quest) showed positive ANA, titer 1:1280, nuclear speckled, positive...

Frustration

I had a positive ana test last May and I was told I had lupus. Then I was told by the doc that it is not lupus. I have been...

Tilted Kidneys and diagnosis

Hi everyone. I’m learning about Lupus, being referred to rheumatologist and my head is in a spin but also making sense why I’ve been so bad for so long. I...

ANA? are they always positive?

hi everyone im currently going through the slow process of diagnosis, i am yet to have my ana panel taken, I've done some reading on them and just want to...

Can someone help explain this?

I see doctor Monday but wondered if someone might explain this to a newbie Thanks...

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