Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

How do you feel about using technology to help manage health? Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Lupus diagnosis

I looked back on my medical diagnosis over the years and individually each diagnosis culminates to a final diagnosis of Lupus and I wonder why Dr. weren’t able to give...

Assistance with ANA test results

I have been having symptoms of inflammatory arthritis for over 5 years. I get intermittent episodes of burning pain in my spine along with pain in front hip bones, shoulders...

“Almost” Newly Diagnosed

Hello everyone. I’m glad I found this community. I am in the process of possibly getting diagnosed due to lab results. (Ive tested positive or ANA Titer and Anti-dsDNA, etc)...

"Overlap" ??

I was diagnosed with sjogrens, RA, and raynauds. I also have an autoimmune thyroid condition. Last appointment my rheumatologist's PA said my lupus was active based on my labs. Perplexed...

I Feel Like I Have Lupus but Bloodwork is "Normal"

Hey everyone, I feel so lost at the moment and feel so frustrated, overwhelmed and down. Since October my hands and wrists have been hurting so much and randomly go...

Covid long hauler and lupus

I am an 80 year old man being tested now for lupus, and the probability is high that I have the disease. I'm a covid long hauler, and thought the...

Lupus Awareness Month

What has been the one thing you’ve learned during lupus awareness month, so far, that you didn’t know before?...

What is the first visit like after Lupus Diganosis

What can I expect for the first appointment to my Rheumatologist First...

First Rheumatology appointment

Hi everyone! I have my first Rheumatology appointment tomorrow- I had to wait over a year for this- so it been a long wait- (Canada universal medical ;)). I am...

What is wrong with me?

44 year old female. Seeking diagnosis. Long post warning. Looking for someone who has experienced similar symptoms/blood work. 1/23: Blood work (Quest) showed positive ANA, titer 1:1280, nuclear speckled, positive...

Categories

Select a category to find topics that interest you.