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Read conversations, start a discussion, and connect with others about Lupus.

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since...

Know your triggers?

Do you know your flare triggers? If so, what things are triggering flares for you?...

How do you cope when you are flaring but you have obligations?

Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How...

Chemotherapy

Tomorrow I start my first round of chemo. Anyone else had this to try and get into remission? How did you feel...

End of Year

What are you most proud of on your lupus journey throughout the year of 2023?...

crying

Does anyone ever have that cold feeling of tears running down my face....

Being better

What does “better” beyond lupus and everything else you have going on look like for you?...

Plans for Thanksgiving

What are your plans to keep yourself stress free during thanksgiving?...

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