Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Being better

What does “better” beyond lupus and everything else you have going on look like for you?...

Plans for Thanksgiving

What are your plans to keep yourself stress free during thanksgiving?...

Afraid to ask for help?

Are you afraid to ask for help on your lupus journey? If so, why do you think you have that fear?...

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...

It's Giveaway Time!

One lucky winner will receive a pair of Warmies microwavable slippers! Get more details about the giveaway here.

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...

Coping with the first year after diagnosis and tips for keeping track of symptoms

I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...

Making family believe you really are sick

Does anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...

Sojourns syndrome

Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...

Im still learning ...does anyone suffer with emotional issues due to lupus?

I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...

Categories

Select a category to find topics that interest you.