Chemotherapy Tomorrow I start my first round of chemo. Anyone else had this to try and get into remission? How did you feel after?...Reactions0reactionsComments1 repliesCoping
Type 1 Diabetes & Lupus?Do any of you also have Type 1 Diabetes? What Lupus treatments work for you that don’t mess with your blood sugars? Has anyone previously had JRA? Also, is anyone...Reactions0reactionsComments14 repliesCoping
End of YearWhat are you most proud of on your lupus journey throughout the year of 2023?...Reactions0reactionsComments3 repliesCoping
cryingDoes anyone ever have that cold feeling of tears running down my face....Reactions0reactionsComments1 repliesCoping
Being better What does “better” beyond lupus and everything else you have going on look like for you?...Reactions0reactionsComments4 repliesCoping
Plans for Thanksgiving What are your plans to keep yourself stress free during thanksgiving?...Reactions0reactionsComments10 repliesCoping
Afraid to ask for help?Are you afraid to ask for help on your lupus journey? If so, why do you think you have that fear?...Reactions0reactionsComments9 repliesCoping
What gifts would you want to receive? Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...Reactions0reactionsComments11 repliesCopingDiagnosisFriends & Family
Do you experience brain fog? Please share your experience with us!Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...Reactions0reactionsComments3 repliesBrain FogTips & AdviceCoping
Coping with the first year after diagnosis and tips for keeping track of symptoms I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...Reactions0reactionsComments4 repliesCoping