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Read conversations, start a discussion, and connect with others about Lupus.

Heat and flares

For those in the high heat areas how does the heat affect you? Many think heat is better but for me it agitates my body and brings on flares....

Breathing

Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...

Anyone else having balance issues or TIA's?

This question comes from the community member Mrschp: "Has anyone ended up with balance issues? Over the past two months, I have fallen four or five times. I can't remember...

benlysta

This may be an odd question..anyone experienced flares a few hours after benlysta iv infusion..i always get flare symptoms after my infusions...

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

Digestive issues

Does anybody fight getting nausea diarrhea, for no reason. Food is offensive to the smell?...

I have chronic diarrhea anyone else?

This is weird talking about! I can't go anywhere without having to go so I stay home lately I can not even walk my dog depressing drs are doing all...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...

Could this be a malar rash?

I've had a rash on my face that comes and goes for a few years now. I also have a lot of joint pain and swelling in my wrist and...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

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