13 Months Later...I recently had my annual check up with blood tests. The results were not as I had expected 🤔 the RA was slightly down, but everything else was elevated. For... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments2 comments
10 Years Before I Learned What Was WrongHello, my name is Qua’Shana Brown and this is my Lupus journey. This journey only goes to really when I got my official diagnosis. A lot happened afterwards. Warning, this... By Shana10 min readBookmark for laterReactions 0 reactions Comments1 comments
I Am Not CrazyI had had Fibromyalgia for probably 15+ years when I got my Lupus diagnosis. I was the one that asked my family doctor to run the test. As with Fibromyalgia... By Rgravesghp2 min readBookmark for laterReactions 0 reactions Comments5 comments
Gluten Free Diet?I constantly get tired and sometimes out of breath for no apparent reason. Has anyone been successful by switching to a gluten-free diet? I am now in remission but still... By Ween 741 min readBookmark for laterReactions 0 reactions Comments2 comments
Sick, Tired and Beyond Fed UpI've been off work since March. Spent a lot of time back and forth to the doctor. The first few times they completely kept blowing me off and passing between... By Frustrated2 min readBookmark for laterReactions 0 reactions Comments11 comments
MaureenI live alone with my little dog , unfortunately my two children are a distance away and are not keen on looking after a 77 year old mum if my... By limping lena1 min readBookmark for laterReactions 0 reactions Comments2 comments
My Systemic Lupus StoryIn the past year my lupus has progressed to arriving monthly. The Prednisone isn't as effective as in the past. Although I never smoked, I have chronic pleurisy, which has... By CommunityMembera24e971 min readBookmark for laterReactions 0 reactions Comments2 comments
Has Anyone Used Medical Marijuana?I am just wondering if anyone has used medical marijuana and if so did it help with pain and symptoms? If was just recently diagnosed and I am a little... By Kara04121 min readBookmark for laterReactions 0 reactions Comments5 comments
Hello & Positive Energy from New ZealandIt is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds- it is a joy to go out into... By cireland1 min readBookmark for laterReactions 0 reactions Comments2 comments
Meds Questions?I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is anybody getting great results from these drugs? Is... By frans3331 min readBookmark for laterReactions 0 reactions Comments2 comments
In Sickness and In Health?Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of myself due to Lupus. We divorced recently and... By CommunityMember14321 min readBookmark for laterReactions 0 reactions Comments3 comments
Finding Out More About LupusOK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did you guys know that lupus gives you that?... By LauraS1 min readBookmark for laterReactions 0 reactions Comments8 comments
Is it Lyme Disease or Lupus?Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life, I played basketball my high school year and... By Aissa1 min readBookmark for laterReactions 0 reactions Comments3 comments
It Started With a RashI broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever been tested for lupus. I said no, but... By CommunityMember3f7d301 min readBookmark for laterReactions 0 reactions Comments1 comments
Is This Lupus?Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does anyone else have this? Yet, on an almost... By Shiv1 min readBookmark for laterReactions 0 reactions Comments1 comments
ANA Positive, What's Next?I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually became more frequent. I began experiencing extreme fatigue... By Candy1 min readBookmark for laterReactions 0 reactions Comments9 comments
Diagnosed with Lupus One Month AgoI broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I feel itchy all night. That's when they decided... By CommunityMemberc2fb641 min readBookmark for laterReactions 0 reactions Comments6 comments
Fear and HopeAt the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick I was sure I was on my deathbed... By CommunityMember5b7ea11 min readBookmark for laterReactions 0 reactions Comments2 comments
Purple Skin PatchI am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my legs are not doing well. Both of my... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Lupus Plus JourneyHi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on my body that lupus has not effected. Starting... By Sstuart1 min readBookmark for laterReactions 0 reactions Comments3 comments