Ease Joint and Muscle Pain With LupusNine times out of 10, when you are having a flare-up, they start to attack your joints first. Sometimes you can’t notice the symptoms because it seems like a normal...Reactions0reactionsComments0 comments
Preparing to Start Infusion Treatment for LupusFor over 50 years, there were only 3 FDA approved drugs for lupus: hydroxychloroquine, corticosteroids, and aspirin. Other medications, such as immunosuppressants and chemotherapy, have been used off-label to successfully...Reactions0reactionsComments0 comments
Top Lupus Symptoms Include Joint Pain and FatigueLupus can present with many different symptoms and experiences. No two paths with lupus are the same. Differences in severity of symptoms, age of symptom onset, time to diagnosis, and...Reactions0reactionsComments2 comments
Lupus: Immunity and InsectsSummer. The time I year I bask in the sun. I am one of the lucky ones, even with all the medications I take, I do not have sun sensitivity...Reactions0reactionsComments10 comments
When Lupus Limits Physical AffectionDo you know what my husband needs? A hug. A reassuring hand on his arm. A gentle back rub. All simple physical gestures, and all too frequently beyond my ability...Reactions0reactionsComments2 comments
Changing My Diet With LupusEveryone living with lupus is different. However, I have found that making a few changes to my diet has helped improve my health. In my experience, my lupus improves when...Reactions0reactionsComments0 comments
What Is Undifferentiated Connective Tissue Disease?Undifferentiated connective tissue disease (UCTD) is a term given to an autoimmune disease affecting the connective tissue. Autoimmune diseases occur when your body’s defense system, the immune system, is too...Reactions0reactionsComments2 comments
Expectation vs. Reality: The Impact of Lupus on Quality of Life“But you don’t look sick,” is what so many people living with lupus are told. Our 2020 Lupus In America survey revealed what it is like to live with a...Reactions0reactionsComments6 comments
The Unlikely Story of a Lucky Diagnosis, Part 2Editor’s note: This is the second article in a 2-part series. The first is “The Unlikely Story of a Lucky Diagnosis, Part 1” I was diagnosed with stage 4 lupus...Reactions0reactionsComments1 comments
Post-Activity Stiffness and Psoriatic ArthritisPlease do not take this as the standard stiffness all of us with psoriatic arthritis usually experience first thing in the mornings. I want to talk more about being active...Reactions0reactionsComments0 comments
Age of Lupus Symptom Onset vs. DiagnosisNot only do symptoms of lupus vary widely, so does the length of time that symptoms stay present. Symptoms such as brain fog, seizures, alopecia, and rashes may show up...Reactions0reactionsComments0 comments
Ask The Advocate: How PsA Impacts Daily LifePsoriatic arthritis can change how you live your life every single day. This condition is the center of the wheel that outreaches to all different aspects of life: physical and...Reactions0reactionsComments0 comments
Finding a Good RheumatologistPeople who have chronic health conditions like ankylosing spondylitis (AS) or other similar diseases might be advised by their regular doctor or primary care physician to see a specialist known...Reactions0reactionsComments0 comments
4 Ways I Advocate For Myself At The ER or Urgent CareAs someone living with lupus, there are times you have an urgent matter that needs immediate attention. When your doctor is not available to see you, the ER or urgent...Reactions0reactionsComments0 comments
What Does Life With Lupus Look Like In 5 Years?Looking at Facebook on my phone, I see a post that reads, “What would you do if you had a glimpse for one hour of where your life would be...Reactions0reactionsComments0 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for...Reactions0reactionsComments0 comments
Brain Fog: The Impact of RA on Mental FunctioningResults from the 2019 RA In America Survey showed that 61 percent of survey participants living with RA experienced brain fog within the last month of taking the survey. Along...Reactions0reactionsComments0 comments
Living With Fibromyalgia And ASWhen you live with ankylosing spondylitis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AS also...Reactions0reactionsComments0 comments
“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it's you against the world. You're living with this secret, this shadow, this double-life —...Reactions0reactionsComments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...Reactions0reactionsComments0 comments