4 Self-Advocating TipsWhen suffering from such a mysterious illness, you are often required to see multiple doctors that specialize in different things. I can definitely get a little messy at times. This...Reactions0reactionsComments0 comments
At-Home Devices That Can Monitor Your HealthAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...Reactions0reactionsComments0 comments
It Is Hard to Have Fun in the Sun With LupusThroughout my life, one of my all-time favorite sensations has been feeling the warmth on my skin from rays of sunshine. I love feeling warm from head to toe. Growing...Reactions0reactionsComments5 comments
Don’t Stress Your Next FlareYou know what it is like. You’ve had a really good day, or perhaps week. Everything is going your direction and you feel you finally have a handle on your...Reactions0reactionsComments0 comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...Reactions0reactionsComments0 comments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...Reactions0reactionsComments0 comments
Dry, Cracked, and Very ParchedA few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe...Reactions0reactionsComments0 comments
In America: What's That?The In America survey is now closed. Are you one of the millions of people dealing with lupus? We know how much lupus can impact your life – and we...Reactions0reactionsComments0 comments
Living with Discoid LupusDiscoid lupus can affect any person's emotional aspect of life. You ask yourself if you are beautiful enough; will you love yourself so others can love you? Will others be...Reactions0reactionsComments17 comments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...Reactions0reactionsComments0 comments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...Reactions0reactionsComments0 comments
The Unlikely Story of a Lucky Diagnosis, Part 1It was the fall of 2002. I was 15 and had just started high school at a new school in my hometown of Tehran, Iran. I wanted to make new...Reactions0reactionsComments1 comments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same...Reactions0reactionsComments0 comments
How Do I Find Virtual Health Services?It can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...Reactions0reactionsComments0 comments
Mental Health Month 2020: Not Just In Your HeadA lot of people assume mental health happens in the mind, and the body is just along for the ride. People who've experienced stress, anxiety, depression, or even minor emotional...Reactions0reactionsComments0 comments
What to Avoid if You Have LupusWhen living with lupus, flares are a cause for worry. You may find yourself wondering: what can I do to help avoid flares and live as normally as possible? Fortunately...Reactions0reactionsComments18 comments
Spousal Support and LupusImagine being with someone that loves you for you and not for what you could do for them. Someone that loves you through thick and thin no matter what you...Reactions0reactionsComments2 comments
Take the Fatigue and Health Survey!The 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with you soon.Exhaustion, tiredness, weariness... fatigue. We know chronic...Reactions0reactionsComments0 comments
12 Tips for Dressing with LupusLupus has its challenges and nothing is more disheartening than not having the basic human functions on a flare day. Flares can range from mildly uncomfortable to the “stone mummy”...Reactions0reactionsComments10 comments
Rheumatic Disease and the COVID-19 CoronavirusAs the number of cases of COVID-19 increases in the US and the world, people with rheumatic diseases are wondering if their immunosuppressants put them at greater risk of acquiring...Reactions0reactionsComments0 comments