Lupus In America: What's That?
Last updated: April 2023
Are you one of the millions of people dealing with lupus? We know how much lupus can impact your life – and we want to hear from you.
Lupus can be challenging. To learn more about its challenges, we are conducting our annual survey. By taking our survey, you can bring awareness to the realities of life with lupus.
The survey is now closed. Thank you to all who participated!
What is the survey about?
The survey covers "basics" like your diagnosis and treatment experiences but also dives into the nuances of lupus, like the emotional impact and day-to-day challenges. In addition, you will have the opportunity to tell us about lupus and any other conditions you are living with and how each impacts your life.
Why should you take the survey?
Each person who takes the In America survey contributes to a better understanding of lupus and other health conditions. With better knowledge, we can help others navigating health challenges feel less alone. We hope to capture a full picture of all aspects of your health experiences and bring greater awareness to conditions that may be misunderstood. Sharing your experiences through the survey can reveal how similar each person’s journey is and the differences that make each journey unique.
What will the survey ask me?
The survey will ask about different moments of your journey with lupus, including:
- Symptoms and symptom management
- Quality of life
- Treatment awareness and experience
- Other diagnosed conditions
We do not require your name, address, or other personal information to participate. You also do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when possible. You may continue where you left off.
How do we use the In America survey data?
Survey responses help our partners, and us better understand the lupus community. All survey responses remain confidential and reported only in total. This means your specific responses will not be reported individually. All information will become the property of Health Union, LLC.
What happens after I take the survey?
After the survey closes each year, Lupus.net will share the responses with the community and highlight important findings from the survey. You can read the latest In America survey findings in Managing the Unimaginable: Lupus Symptom Control.
But that is not all. Throughout the year, we publish articles and videos based on what we learned from the survey. We hope this survey-driven content contributes to the information available to those affected by lupus and helps you all connect with others who walk the same path.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?