Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we use connected health technology to track symptoms, monitor...Reactions0reactionsComments0 comments
Describing The Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of Lupus.net) partnered with the US Pain Foundation for our first ever Chronic Pain In America survey to ask members of...Reactions0reactionsComments0 comments
Diet Considerations for LupusIf you are a lupus patient, chances are, you have tried a diet trend at some point. You might have gone gluten-free or vegan. You might have eliminated red meat...Reactions0reactionsComments5 comments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of Lupus.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
What Do You Know About Rheumatic Diseases?What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...Reactions0reactionsComments0 comments
3 Things I Struggled With After Being Diagnosed With LupusWhen the doctor said, "you have lupus,” I felt like the floor dropped out from underneath me. At our first appointment, he’d told me that lupus was his suspected diagnosis...Reactions0reactionsComments9 comments
Importance of Managing Blood Pressure With LupusHeart complications are more common in people with lupus than in the general population. These complications include heart disease, heart attack, cerebrovascular disease, and stroke. They are leading causes of...Reactions0reactionsComments0 comments
Family Planning with LupusFamily planning can be a tricky, delicate subject for many people. Having lupus only makes the matter more challenging. While it does not mean that children are not a possibility...Reactions0reactionsComments3 comments
Lupus And A Sense of ControlWe recently surveyed hundreds of people with lupus to find out more about their daily experiences, diagnosis journey, symptoms, and how it all affects life in general. The results from...Reactions0reactionsComments5 comments
Building a Career as a Lupus WarriorHealth Union did a Lupus In America survey that revealed: "More than 6 in 10 people with lupus feel their lupus interferes with their ability to work." I have felt...Reactions0reactionsComments1 comments
Getting Disability After Getting a Denial LetterWhen I first had my kidney failure, I never thought that I could even get insurance because I was denied the first time around. I know it's overwhelming having all...Reactions0reactionsComments5 comments
Migratory Joint Pain, Curbing the Pain, and a Potential FlareAll my joint problems, pain, or inflammation, have always been "migratory." This type of joint pain occurs with inflammation spreading from one joint to another at a time. In my...Reactions0reactionsComments2 comments
Retaining FluidMost people don’t know or will not understand how fluid retention starts, and also how you retain fluid. Well, my experiences have taught me to notice when I start to...Reactions0reactionsComments1 comments
How Lupus Impacts Work and CareerLupus can affect many different areas of a person’s wellbeing. Physical symptoms, emotional stress, and mental health impacts can all take various tolls on quality of life. One area that...Reactions0reactionsComments0 comments
Other Health Conditions Experienced Alongside LupusThe journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with many other conditions. Because of this, it can...Reactions0reactionsComments13 comments
Chest Pain and Shortness of BreathWhen dealing with lupus, I would not expect to have chest pain or even shortness of breath. However, I have had plenty of times where I have had chest pain...Reactions0reactionsComments1 comments
My First Benlysta InfusionAt 7:45 a.m., I approached the medical staff stationed outside my doctor's office to have my temperature taken. My husband had just dropped me off for my first infusion treatment...Reactions0reactionsComments0 comments
4 Items I Wish I Would Have Researched Before Moving CitiesMoving is a part of life. Whether it’s a new job, family, or circumstance. Moving is a hard reality of life. Many people research schools, crime, neighborhoods, etc. But having...Reactions0reactionsComments0 comments
Lupus and Glandular FeverWhen I was 22 years old I got extremely sick with glandular fever. I still remember it so vividly. I had been to the gym for a workout and swim...Reactions0reactionsComments3 comments
Relationships With Lupus Healthcare ProvidersWe recently surveyed hundreds of people with lupus for our 2020 Lupus In America survey. We asked about all aspects of life with lupus, including healthcare and the relationship people...Reactions0reactionsComments3 comments