When Family and Friends Do Not Accept Your Illness"Chronic illness will show you two things very clearly: the amazing compassion of some people you hardly know at all, and the disgusting selfishness of some people you thought you...Reactions0reactionsComments0 comments
Can Lupus be Fatal?Can lupus become fatal? Yes, for some people, lupus can become fatal. Lupus causes many complications with health issues. It is dangerous because lupus attacks the organs. Our kidneys and...Reactions0reactionsComments1 comments
Exercise IntoleranceI contracted mono (Epstein-Barr virus) at the age of 22 when my health problems began. I was fit and healthy before this, and part of my routine was swimming at...Reactions0reactionsComments0 comments
From Lupus to Menopause: The Slippery Slope of Lupus Issues, Part 1All aboard, next mood swing in t-minus 6 minutes. Is it hot in here? Wait, have you seen my glasses, my keys, my phone? This is what I go through...Reactions0reactionsComments0 comments
Tips for Wearing Makeup With LupusWearing makeup can make you feel beautiful and relaxed, but when should you wear makeup, and how? Around 2016, when I was going through my second kidney failure, it started...Reactions0reactionsComments6 comments
Restless Legs and the Endless Search for RestOver the past decade, I have experienced varying levels of restless leg syndrome (RLS). When it’s been at its most severe, during my pregnancies, I’ve found myself thinking that the...Reactions0reactionsComments2 comments
Let the Notes Take the Pain AwayImagine, you are driving down the expressway in morning rush hour traffic. The red lights from the cars in front of you glaring at your bloodshot eyes after a night...Reactions0reactionsComments1 comments
DepressionEditor’s note: Content warning – This article includes experiences with suicidal thoughts. I just recently entered a depression stage where it is impossible for me to get out of. I...Reactions0reactionsComments0 comments
How I Balance Work and LupusI’m 3 hours away from the end of my workday when I realized I’m in steroid withdrawal. Sweat beads on my forehead, even though I just turned up the AC...Reactions0reactionsComments0 comments
Elements to a Healthy Mindset to Fight LupusIt’s hard to change your mindset when you are dealing with pain every day. It becomes a task that can sometimes feel impossible. Every day we work to stay positive...Reactions0reactionsComments5 comments
How I Changed my Schedule to Accommodate Lupus FatigueWith a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for the rest of our lives. For others, a...Reactions0reactionsComments2 comments
Take the Managing Treatment and Medication SurveyUPDATE: The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like lupus. Often...Reactions0reactionsComments0 comments
Stigma and Shame I Have EncounteredSomeone told me that I disgust them. Someone told me that I should kill myself. Someone asked me, why I would bring a child into the world knowing that I...Reactions0reactionsComments0 comments
Lupus, Depression, and Self-Harm, Part 2Content note: This article describes experiences with self-harm. If you or a loved one are struggling, consider reading our mental health resources. --- This is the continuation of "Lupus, Depression...Reactions0reactionsComments1 comments
Exercise for People Living With LupusBetween joint pain, fatigue, and sun sensitivity, it can be difficult for people living with lupus to find the right type of exercise for them. While some people with lupus...Reactions0reactionsComments0 comments
Beware Lupus Advocates of PhishingBeing an advocate, you must watch out for a lot of things. Let me teach you one. Now you have modern-day phishing, and it is so bad because of the...Reactions0reactionsComments0 comments
The Stages of Accepting You Have LupusLupus might impact your skin, joints, or kidneys. But living with a long-term chronic illness forever impacts your mindset. In many ways, adjusting to life with lupus can feel like...Reactions0reactionsComments13 comments
What Is In My Hospital Bag: The Fun StuffIn "What Is In My Hospital Bag – The Basics, Part 1" we discussed the bare minimum of what you would want to take in your hospital bag. Basically, the only...Reactions0reactionsComments0 comments
Peace Comes with BoundariesDo you have problems saying no? Does setting boundaries for yourself and others create stress that creates flares? Sometimes, we can all get caught up in taking on more than...Reactions0reactionsComments0 comments
An Interview With My Spouse About My LupusI decided to interview my husband to learn someone else's opinion of me and to know the support I have. Nothing really changes, everything is really the same. I just...Reactions0reactionsComments0 comments