Community Views: What Lupus Pain Feels LikeAs with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain in specific joints for some people, while others... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments22 comments
Dear Lupus, I Declare VictoryDear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and can bring on so much agony and pain... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Settling on AcceptanceLike anyone who has been diagnosed with a chronic condition, learning I had lupus was a pretty emotional time for me. I remember being bombarded with so many feelings at... By Alli Fair2 min readBookmark for laterReactions 0 reactions Comments1 comments
Interview With Entrepreneur and Lupus Warrior Sara GormanAs a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed by clunky drugstore pillboxes. I already felt like... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips To Be Ready For The Bad DaysWe have all been there – work, school, and maintaining a household. Some things that most don’t think twice about. It is just a part of adulthood, but for us... By Chandra Jo Crosby3 min readBookmark for laterReactions 0 reactions Comments1 comments
Tips For How to Make the Most of a Hospital StayAs lupus patients, our health can sometimes take a turn that requires immediate medical attention – which means a trip to the ER and most likely a hospital stay. Lupus... By Gabrielle Davis2 min readBookmark for laterReactions 0 reactions Comments0 comments
Victim or Victor?Do you ever feel like you are in a dark place? Like you can’t crawl out of a lupus flare before another flare takes a hold on you? Do you... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Journey To Filing For Disability, Part 1At almost 30 years old, in 2016, the word disability wasn’t even in my vernacular. Sure I knew what it was. I knew a few people in my support group... By Amber Blackburn, RN4 min readBookmark for laterReactions 0 reactions Comments0 comments
Health InsuranceWhen I moved back home, I didn’t think things in the system would become even harder to deal with. I just had to make a shift in my life because... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments1 comments
Pants That Covered My Pain and Brightened My FutureI crave food! I crave food! I crave food all of the time! Whenever my rheumatologist and I discuss a regimen of prednisone, I find an excuse to avoid the... By Christopher Reed3 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Views: What Lupus Fatigue Feels LikeFatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different from just feeling tired. When we are tired... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments15 comments
Things I am Tired of People Saying Because I Have a Chronic IllnessThere are so many things that I am tired of saying because of my autoimmune disease. Most of it relates to spousal support. There have been times when people told... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments6 comments
Accepting Lupus After Your Mourning PeriodBeing diagnosed with lupus was probably one of most difficult moments you have had to deal with. You most likely had a whirlwind of emotions and negative thoughts. In all... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments5 comments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Advocacy: We Have the Strength in Service of Ourselves“You have the strength to get up.” Many years ago, a woman got up in a room full of over 300 lupus patients and caregivers and made this statement to... By Christopher Reed3 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Childcare Is Essential for Me as a Mom With LupusI am a stay-at-home mom and a work-at-home mom, but almost never at the same time. This is because I’m also a lupus mom and I don’t have enough spoons... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments2 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Judgments We Can Face With LupusI had to give up my career in the travel industry 15 years ago which was an incredibly difficult time in my life, I absolutely loved my job and I... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments1 comments
My Lupus Advocacy Work: An Interview With Racquel DozierOur Editorial Team spoke with Racquel Dozier, an advocate for the Lupus.net community who has been writing about her lupus journey for our community since 2020. Racquel was diagnosed officially... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
You Should Tell Your StoryWhen I decided to make a lupus video for Facebook, I did not expect to get the recognition that I would get. All my life I only heard my mother... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments