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Are you living with CREST syndrome?

Thank you to community member penny130 whose story (linked below) inspired us to look further into the connection between CREST syndrome and lupus - https://lupus.net/stories/car-wreck.

This article provides some information on the link between the two: https://lupus.net/clinical/crest-syndrome

Have you had experience with CREST syndrome and lupus?

  1. thank you for sharing your story about CREST syndrome. It prompted us to do some research and produce the article linked above. I hope this starts a good conversation! - Liz (Lupus.net Team Member)

    1. After reading this article I now have to do some more research. I have had problems swallowing, tight skin to the point of screaming at the top of my lungs in pain. Also the red spots or red lines I got those and they get worse when I went and backed in the sun before knowing I had lupus.

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