How To Stay Positive When You Feel Like CrapA question I often get asked as a lupus patient, along with "Why is your hair so messy?" and "How much coffee can one person drink?" is "How do you...Reactions0reactionsComments7 comments
How To Tell if You are With a Supportive Partner"A good marriage is one which allows for change and growth in the individuals and in the way they express their love.” – Pearl S. Buck Marriage isn't easy, as...Reactions0reactionsComments0 comments
5 More Tips to Manage InsomniaAs a lupus patient, I often struggle with insomnia. I previously wrote an article on ways to manage it. Here are some more tricks I’ve learned to help me fall...Reactions0reactionsComments1 comments
How To Win at Black Friday When You Are Chronically IllBlack Friday. When we hear these words, most of us think of frenzied crowds charging through Walmart doors, exhausted sales associates and harangued store managers, and people filling their carts...Reactions0reactionsComments1 comments
All About HydroxychloroquineTwelve years ago, I sat in a rheumatologist's office for the first time. "You have lupus," she said. "I'm going to start you on a dose of Plaquenil or hydroxychloroquine."...Reactions0reactionsComments5 comments
3 Strategies to Get a Good Night's SleepLupus patients are often fatigued and need more rest than the general population – which is why it’s so frustrating that many people with lupus experience insomnia as a symptom...Reactions0reactionsComments5 comments
My Diagnosis Story, Part 2During my second semester of grad school, I continued to search for a diagnosis. I was growing sicker and sicker. The brain fog intensified and the fatigue became unbearable. I...Reactions0reactionsComments2 comments
Why You Need a Lupus Role ModelWhen I first became sick with lupus, I was a twenty-year-old college student majoring in music performance. My life was filled with books and exams, orchestra rehearsals, and practicing the...Reactions0reactionsComments0 comments
My Diagnosis Story, Part 1I was first diagnosed with lupus, an autoimmune disease when I was 22. But like many people with invisible illnesses, it took a long time to finally figure out why...Reactions0reactionsComments0 comments
That Time Steroids Made Me Crave Cheese-Flavored Ice CreamIt was 11 pm on a Friday night, and I was stalking the frozen food section of my local grocery store. Like King Arthur searching for the Holy Grail, I...Reactions0reactionsComments0 comments
Lupus and My Struggle with Revenge Bedtime ProcrastinationThe year of the pandemic has brought us few experiences outside of our homes, but certainly many new words and phrases. "Zooming," "lockdown," and "work from home" have all become...Reactions0reactionsComments0 comments
8 Health Insurance Terms You Should KnowAside from paying your monthly premium, health insurance is something you rarely think about when you’re healthy. But when you’re diagnosed with lupus, you will frequently need to call your...Reactions0reactionsComments0 comments
Tips for Managing Lupus Brain FogBrain fog: It’s the bane of many people's existence. Also referred to as cognitive dysfunction, brain fog feels like having a head full of cotton through which your thoughts just...Reactions0reactionsComments2 comments
Surviving Hurricanes When You Have LupusOutside my window, an angry brown river raged down what was once a road. The flood stormed over the 3-foot-high concrete barrier separating the street from the sidewalk. Tree branches...Reactions0reactionsComments0 comments
When Family and Friends Do Not Accept Your Illness"Chronic illness will show you two things very clearly: the amazing compassion of some people you hardly know at all, and the disgusting selfishness of some people you thought you...Reactions0reactionsComments0 comments
How I Balance Work and LupusI’m 3 hours away from the end of my workday when I realized I’m in steroid withdrawal. Sweat beads on my forehead, even though I just turned up the AC...Reactions0reactionsComments0 comments
How I Changed my Schedule to Accommodate Lupus FatigueWith a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for the rest of our lives. For others, a...Reactions0reactionsComments2 comments
Exercise for People Living With LupusBetween joint pain, fatigue, and sun sensitivity, it can be difficult for people living with lupus to find the right type of exercise for them. While some people with lupus...Reactions0reactionsComments0 comments
The Stages of Accepting You Have LupusLupus might impact your skin, joints, or kidneys. But living with a long-term chronic illness forever impacts your mindset. In many ways, adjusting to life with lupus can feel like...Reactions0reactionsComments13 comments
What is Lupus Cerebritis?Four years after I was diagnosed with lupus, I stood up from my desk one afternoon and forgot how to walk. My feet and legs didn't hurt; they just remained...Reactions0reactionsComments12 comments