How A Minimalist Mindset Improves My Life With LupusI first discovered "The Minimalists," Joshua Fields Millburn and Ryan Nicodemus, through a friend. My friend was in the process of paring down his possessions as he packed to move...Reactions0reactionsComments1 comments
How Adopting a Disabled Dog Helped Me Accept My Own DisabilityThree years after I was diagnosed with lupus, I was scrolling through emails on my phone during my lunch break when a picture caught my eye. Beneath the logo of...Reactions0reactionsComments5 comments
What To Expect When Taking CorticosteroidsI stare up at the IV bag of clear liquid snaking into my arm: "1000mg methylprednisolone," the nurse at my rheumatologist explains. This is the last of 3 emergency infusions...Reactions0reactionsComments0 comments
How I Learned To Manage My Lupus With ExerciseBefore I was diagnosed with lupus, I was never a fan of exercise. In gym class in high school, I was usually the last one out of the locker room...Reactions0reactionsComments1 comments
Tips to Fight Lupus FatigueFor many people living with lupus, fatigue is the most common symptom experienced. Whether it’s a persistent lack of energy, a sense of physical and mental lethargy, or all-over exhaustion...Reactions0reactionsComments2 comments
Why I Use a Handicapped Pass Even When I Don't Feel TerribleI first asked my doctor to prescribe me a handicapped parking pass a little over 8 years ago. Perhaps “ask” is not the right word. My brain was inflamed at...Reactions0reactionsComments0 comments
Scheduling My Life Around LupusWhen I first became sick at 21 years old, I was an active person balancing a job and my first year of graduate school. I would often study until late...Reactions0reactionsComments1 comments
Makeup Tips I Use To Look My Best With LupusFor the most part, lupus is an invisible illness. Most people can’t see the aching joints and fatigue that we live with every day. Lupus can change our appearance over...Reactions0reactionsComments6 comments
Managing Lupus Hair LossLosing my hair was one of the first symptoms I noticed when I began to get sick. When I brushed my hair, more strands than usual remained in the bristles...Reactions0reactionsComments12 comments
Lupus and DepressionEveryone knows the feeling of being sad, disappointed, or stressed. These feelings are normal, especially after a negative experience like a falling out with a family member or the loss...Reactions0reactionsComments0 comments
My COVID Vaccine Experience, Part 2As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same hospital. Same parking lot. Same signs directing patients...Reactions0reactionsComments2 comments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion, low-level tiredness, or even being too wiped out...Reactions0reactionsComments0 comments
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage of the Americans with Disabilities Act, it isn’t...Reactions0reactionsComments11 comments
Interview With Entrepreneur and Lupus Warrior Sara GormanAs a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed by clunky drugstore pillboxes. I already felt like...Reactions0reactionsComments0 comments
Why I Joined a Lupus Support GroupAt my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic bread and marinara sauce could settle the nervousness...Reactions0reactionsComments9 comments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I was wearing a fluorescent coral dress and nude...Reactions0reactionsComments0 comments
My COVID Vaccine Experience, Part 1After quarantining for 9 months, I was excited when immunocompromised people were scheduled to receive the COVID-19 vaccine in my state. As a lupus patient on immunosuppressants, I would be...Reactions0reactionsComments1 comments
What A World Built For Lupus Patients Would Look LikeAs a sick person in a world built for the healthy and able-bodied, I’ve often struggled to keep up with my peers who do not live with lupus. Occasionally, though...Reactions0reactionsComments2 comments