How I Balance Work and LupusI’m 3 hours away from the end of my workday when I realized I’m in steroid withdrawal. Sweat beads on my forehead, even though I just turned up the AC...reactionscomments
How I Changed my Schedule to Accommodate Lupus FatigueWith a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for the rest of our lives. For others, a...reactions2comments
Exercise for People Living With LupusBetween joint pain, fatigue, and sun sensitivity, it can be difficult for people living with lupus to find the right type of exercise for them. While some people with lupus...reactionscomments
The Stages of Accepting You Have LupusLupus might impact your skin, joints, or kidneys. But living with a long-term chronic illness forever impacts your mindset. In many ways, adjusting to life with lupus can feel like...reactions13comments
What is Lupus Cerebritis?Four years after I was diagnosed with lupus, I stood up from my desk one afternoon and forgot how to walk. My feet and legs didn't hurt; they just remained...reactions12comments
How A Minimalist Mindset Improves My Life With LupusI first discovered "The Minimalists," Joshua Fields Millburn and Ryan Nicodemus, through a friend. My friend was in the process of paring down his possessions as he packed to move...reactions1comment
How Adopting a Disabled Dog Helped Me Accept My Own DisabilityThree years after I was diagnosed with lupus, I was scrolling through emails on my phone during my lunch break when a picture caught my eye. Beneath the logo of...reactions5comments
What To Expect When Taking CorticosteroidsI stare up at the IV bag of clear liquid snaking into my arm: "1000mg methylprednisolone," the nurse at my rheumatologist explains. This is the last of 3 emergency infusions...reactionscomments
How I Learned To Manage My Lupus With ExerciseBefore I was diagnosed with lupus, I was never a fan of exercise. In gym class in high school, I was usually the last one out of the locker room...reactions1comment
Tips to Fight Lupus FatigueFor many people living with lupus, fatigue is the most common symptom experienced. Whether it’s a persistent lack of energy, a sense of physical and mental lethargy, or all-over exhaustion...reactions2comments
Why I Use a Handicapped Pass Even When I Don't Feel TerribleI first asked my doctor to prescribe me a handicapped parking pass a little over 8 years ago. Perhaps “ask” is not the right word. My brain was inflamed at...reactionscomments
Scheduling My Life Around LupusWhen I first became sick at 21 years old, I was an active person balancing a job and my first year of graduate school. I would often study until late...reactions1comment
Makeup Tips I Use To Look My Best With LupusFor the most part, lupus is an invisible illness. Most people can’t see the aching joints and fatigue that we live with every day. Lupus can change our appearance over...reactions6comments
Managing Lupus Hair LossLosing my hair was one of the first symptoms I noticed when I began to get sick. When I brushed my hair, more strands than usual remained in the bristles...reactions12comments
Lupus and DepressionEveryone knows the feeling of being sad, disappointed, or stressed. These feelings are normal, especially after a negative experience like a falling out with a family member or the loss...reactionscomments
My COVID Vaccine Experience, Part 2As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same hospital. Same parking lot. Same signs directing patients...reactions2comments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion, low-level tiredness, or even being too wiped out...reactionscomments
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage of the Americans with Disabilities Act, it isn’t...reactions11comments
Interview With Entrepreneur and Lupus Warrior Sara GormanAs a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed by clunky drugstore pillboxes. I already felt like...reactionscomments
Why I Joined a Lupus Support GroupAt my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic bread and marinara sauce could settle the nervousness...reactions14comments