Beyond the 9-to-5: Lupus, Work, & Finding Your PathOne of the scariest parts of getting sick with lupus was realizing I’d never be able to work a full-time job. Many...reactions5comments
How I Set Goals With LupusIn my life before lupus, I was goal-oriented and hard-working. Dreams of academic success, a college scholarship, or scoring a high rank...reactionscomments
How To Stay Healthy While On ImmunosuppressantsEvery night, I count out a handful of pills. Six of these pills, which are prescribed by my rheumatologist to keep my...reactions6comments
How to Survive the Holidays with LupusThe winter holidays conjure images of snowmen and candy canes, presents wrapped under a tree or beside a Menorah, and plates piled...reactionscomments
Losing Friends and Family Because of LupusOne of my most painful days with lupus wasn’t a day when my joints were swollen or when my fatigue was overwhelming...reactions17comments
How It Feels to Budget Your EnergyIn my life with lupus, my brain is keeping a constant tally of energy and how to "budget" my energy throughout the...reactions3comments
How I Disguise Steroid Weight GainAnyone who has ever taken steroids knows about their side effects all too well. Irritability, weird food cravings, and heartburn are just...reactions3comments
Fun Things to Do When Lupus Has You Sick and BoredMost lupus patients talk about the fatigue, joint pain, and social isolation that comes with a chronic illness. But a topic you...reactions2comments
The Struggle of Being a Teacher with LupusAs a teacher, the beginning of the school year is usually the most hectic time of the year for me, even though...reactionscomments
Questions to Ask Your Doctor at Your First AppointmentThat first doctor’s appointment with a new rheumatologist can be stressful, no matter how long you’ve lived with lupus. You might be...reactionscomments
Say This, Not That: What Not to Say to Your Friend With LupusOne of the hardest parts of being diagnosed with an invisible chronic illness like lupus, is that your friends and family might...reactionscomments
How To Travel With LupusSince becoming sick with lupus, I travel far less than I used to because the act of traveling is difficult due to...reactions2comments
The Best Pets for Lupus PatientsAs soon as I graduated from college and moved into my own place, I knew I wanted a furry friend to share...reactionscomments
Is It Worse To Have An Invisible Disability or a Visible One?Like most lupus patients, I always wonder if I’d be treated differently by my family, friends, and doctors if my illness was...reactions15comments
Catching the Flu When ImmunocompromisedIn my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that...reactionscomments
My Lupus Fatigue Is Worse in the MorningsAsk most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel...reactions10comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for...reactions3comments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned...reactions7comments
How To Tell If Your Doctor Is a Good DoctorMany new patients with autoimmune diseases, particularly young women, are dismissed, not taken seriously, or even gaslit by doctors. During the year...reactions1comment
The Link Between Lupus and InsomniaI'm not alone in struggling with lupus insomnia. Insomnia can majorly impact patients’ quality of life, especially since so many of us...reactions2comments
