Say This, Not That: What Not to Say to Your Friend With LupusOne of the hardest parts of being diagnosed with an invisible chronic illness like lupus, is that your friends and family might...reactionscomments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned...reactions7comments
The Struggle of Being a Teacher with LupusAs a teacher, the beginning of the school year is usually the most hectic time of the year for me, even though...reactionscomments
Catching the Flu When ImmunocompromisedIn my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that...reactionscomments
The Best Pets for Lupus PatientsAs soon as I graduated from college and moved into my own place, I knew I wanted a furry friend to share...reactionscomments
Questions to Ask Your Doctor at Your First AppointmentThat first doctor’s appointment with a new rheumatologist can be stressful, no matter how long you’ve lived with lupus. You might be...reactionscomments
How To Travel With LupusSince becoming sick with lupus, I travel far less than I used to because the act of traveling is difficult due to...reactions2comments
Is It Worse To Have An Invisible Disability or a Visible One?Like most lupus patients, I always wonder if I’d be treated differently by my family, friends, and doctors if my illness was...reactions15comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for...reactions3comments
The Stages of Accepting You Have LupusLupus might impact your skin, joints, or kidneys. But living with a long-term chronic illness forever impacts your mindset. In many ways...reactions13comments
Books and Movies About Lupus That Help Me CopeOne of the most discouraging parts of being diagnosed with lupus was that my friends and family had no idea what lupus...reactions3comments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick...reactions25comments
Makeup Tips I Use To Look My Best With LupusFor the most part, lupus is an invisible illness. Most people can’t see the aching joints and fatigue that we live with...reactions8comments
The Link Between Lupus and InsomniaI'm not alone in struggling with lupus insomnia. Insomnia can majorly impact patients’ quality of life, especially since so many of us...reactions2comments
The Grief of Losing the Old YouOne of the most difficult symptoms of lupus isn't fatigue, joint pain, or sun sensitivity. It isn’t the rashes or hair loss...reactions5comments
Is FOMO a Symptom of Lupus?Since becoming sick with lupus, I've needed to sleep 2 to 3 hours more than my able-bodied peers in order to function...reactions1comment
What Not To Ask Someone With Lupus"But you don’t look sick." We’ve all heard this, and we all hate it. Every time someone said this to me, especially...reactions17comments
Life With An Invisible IllnessWhen I first became sick with lupus, nearly everything about my life changed. I had once juggled my college classes with work...reactions1comment
Accepting I Have a DisabilityWhen I think of the word "disability," I often think of the universal symbol for disability: a simple blue picture of a...reactions4comments
What to Do if You Are Misdiagnosed or UndiagnosedSome people collect coins, stamps, or rocks. Most lupus patients collect misdiagnoses, unfortunately against our will. By the time I was finally...reactions2comments
