3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to learn to carefully manage my energy, juggle doctors’...reactions2comments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue was at its most severe in the mornings...reactions9comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its name suggests: a thick fog in your brain...reactionscomments
3 Ways to Celebrate Fall, Despite LupusWith its pumpkin patches, apple cider, and promise of comfortable weather, autumn is many people's favorite time of the year. The hint of crisp, cool air offers a reprieve from...reactionscomments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)...reactions25comments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life, and my plans and dreams for the future...reactions4comments
Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when they're going through a divorce, have lost a...reactionscomments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all zap my energy. At home, I can use...reactionscomments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to do household chores. After waking up exhausted and...reactions11comments
How I Tell Men I Dated that I Have LupusA first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in your mind. Will they look like their online...reactions2comments
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me was very sick and needed to go to...reactionscomments
What Not To Ask Someone With Lupus"But you don’t look sick." We’ve all heard this, and we all hate it. Every time someone said this to me, especially in the early years of my illness, I...reactions17comments
How I Became a Patient AdvocateDuring the first 4 years I was sick, I didn't tell anyone about my illness out of fear of rejection. Now, I write and speak about my illness openly. Here...reactions1comment
My Struggle With Insulin ResistanceI sat in my doctor’s office as the 1,000 grams of Solu-Medrol dripped down the clear IV tube and into my arm. Solu-Medrol looks like water, but I wasn’t fooled...reactions1comment
How I Cover My Dark Circles with MakeupLupus is an invisible illness. I don't walk with a limp, need a wheelchair, or show any of the typical physical signs most people associate with disability. My pain almost...reactions1comment
The Struggle of Getting Diagnosed With LupusIf you are struggling to get diagnosed, you are not alone. Most people search for answers for 7 years before they are diagnosed with lupus. The pre-diagnosis stage is one...reactions3comments
Books and Movies About Lupus That Help Me CopeOne of the most discouraging parts of being diagnosed with lupus was that my friends and family had no idea what lupus even was. More well-known diseases, like cancer and...reactions3comments
How Adopting A Dog Helped Me Cope With LupusAt one of my lowest points with lupus, I impulsively adopted a shelter dog. I had been feeling isolated from friends and family due to fatigue that seemed endless. Adopting...reactions7comments
Life With An Invisible IllnessWhen I first became sick with lupus, nearly everything about my life changed. I had once juggled my college classes with work and a social life without too much difficulty...reactions1comment
Decorating for Christmas On a Budget With LupusAffording Christmas decorations when you have lupus isn't always easy. Fortunately, you can find many different decor options at Dollar Tree and discount stores like Ollie's. Check out this video...reactions3comments
