Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life...reactions4comments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion...reactionscomments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue...reactions11comments
I Was Misdiagnosed 7 TimesThe first time I saw a doctor about my chronic illness, I was 22. I had just finished my first semester of...reactions8comments
Has Your Doctor Ever Gaslit You?"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from...reactions11comments
How Lupus Indirectly Caused My Divorce"In sickness and in more sickness," my then-fiance and I joked in the months leading up to our wedding ceremony. We had...reactions6comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its...reactionscomments
3 Ways to Celebrate Fall, Despite LupusWith its pumpkin patches, apple cider, and promise of comfortable weather, autumn is many people's favorite time of the year. The hint...reactionscomments
Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when...reactionscomments
From Care Receiver to CaregiverA few weeks ago, I received a scary phone call from someone I cared about. An elderly relative who lived near me...reactionscomments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to...reactions11comments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all...reactionscomments
How I Tell Men I Dated that I Have LupusA first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in...reactions2comments
How Lupus Made Me Fall in Love with Thrift ShoppingWhen I was at my sickest with lupus cerebritis, my mother-in-law, who had moved in to take care of me, introduced me...reactions9comments
How To Tell if You are With a Supportive Partner"A good marriage is one which allows for change and growth in the individuals and in the way they express their love.”...reactions6comments
How Lupus Changed My Approach to Setting Life GoalsI've always been a Type A, goal-oriented person. In the weeks leading up to New Year's Day every year, I research the...reactions3comments
How I Became a Patient AdvocateDuring the first 4 years I was sick, I didn't tell anyone about my illness out of fear of rejection. Now, I...reactions1comment
My Struggle With Insulin ResistanceI sat in my doctor’s office as the 1,000 grams of Solu-Medrol dripped down the clear IV tube and into my arm...reactions1comment
Exercise for People Living With LupusBetween joint pain, fatigue, and sun sensitivity, it can be difficult for people living with lupus to find the right type of...reactionscomments
How I Cover My Dark Circles with MakeupLupus is an invisible illness. I don't walk with a limp, need a wheelchair, or show any of the typical physical signs...reactions1comment
