It’s Important to Forgive YourselfHave you ever felt guilty for not being able to do something because of lupus? Has your guilt caused you some undue stress? How about just being hard on yourself...Reactions0reactionsComments0 comments
Why You Need a Lupus Role ModelWhen I first became sick with lupus, I was a twenty-year-old college student majoring in music performance. My life was filled with books and exams, orchestra rehearsals, and practicing the...Reactions0reactionsComments0 comments
Facing Ignorance While Living With LupusOwning a handicap sticker should not cause you to feel shame. Some disabilities are not visible, so sometimes others will think you don’t deserve that spot as much as they...Reactions0reactionsComments0 comments
Misdiagnosis and Other Conditions Alongside LupusAs the saying goes, lupus invites all its friends to the party – or in this case, the body. Our 2nd Lupus In America survey gave us a more detailed...Reactions0reactionsComments5 comments
Footwear and ClothingThere are different seasons for different clothing’s but especially for people living with lupus. I learned that a long time ago when I started to have discoid lupus. When I...Reactions0reactionsComments0 comments
Living Past Stigma In Your Lupus BattleOh, you have lupus? What is that, cancer? I knew someone that had that and she didn’t take all those medications you take. She just ate vegetables and was fine...Reactions0reactionsComments3 comments
My Diagnosis Story, Part 1I was first diagnosed with lupus, an autoimmune disease when I was 22. But like many people with invisible illnesses, it took a long time to finally figure out why...Reactions0reactionsComments0 comments
Domestic Violence and LupusI met someone with lupus today, and I will not disclose her name for her privacy, but she told me that I could tell her story. Domestic violence is a...Reactions0reactionsComments1 comments
That Time Steroids Made Me Crave Cheese-Flavored Ice CreamIt was 11 pm on a Friday night, and I was stalking the frozen food section of my local grocery store. Like King Arthur searching for the Holy Grail, I...Reactions0reactionsComments0 comments
Lupus and GeneticsLupus being genetic is a real thing. My mother also has lupus but my sisters have not been diagnosed with it. My middle sister has been experiencing symptoms of it...Reactions0reactionsComments0 comments
4 Reasons Why Fibromyalgia May Be More Harmful Than You ThinkWhat is fibromyalgia? Is it a disorder, a syndrome, an autoimmune disease, or a neurological condition? Is it a result of carrying too much extra weight? I certainly don’t agree...Reactions0reactionsComments2 comments
The Connection Between Lupus and NMOSDPeople with lupus can have other autoimmune diseases. One or more other autoimmune diseases appeared in 30 percent of people with lupus in a study published in 2000. Further research...Reactions0reactionsComments2 comments
I Prefer a Female OBGYNI now completely understand the reasons why I chose female OBGYN’s instead of males. I used to not understand why until I met a man and completely stopped going to...Reactions0reactionsComments0 comments
Lupus and My Struggle with Revenge Bedtime ProcrastinationThe year of the pandemic has brought us few experiences outside of our homes, but certainly many new words and phrases. "Zooming," "lockdown," and "work from home" have all become...Reactions0reactionsComments0 comments
Explaining Lupus to OthersStill, to this day, I feel like I must explain myself to people in detail. Even though times have changed and plenty of people have it and it's widely talked...Reactions0reactionsComments3 comments
I Almost Missed My Second Chance at LifeFor 4 years, 8 months, and 11 days, I anticipated receiving "the call." The call is what just about every dialysis patient prays for and dreams of – a chance...Reactions0reactionsComments3 comments
Discussing All-Things COVID with a Lupus AdvocateCOVID has been with us for over 18 months now! It’s been tough for everyone but especially for those of us who are severely immunocompromised. Today I sat down with...Reactions0reactionsComments0 comments
My Vacation in Puerto RicoPuerto Rico was amazing and I had the most fun I have ever had since pre-COVID and pregnancy. Now that I know what to expect. Before I left Louisiana, I...Reactions0reactionsComments0 comments
8 Health Insurance Terms You Should KnowAside from paying your monthly premium, health insurance is something you rarely think about when you’re healthy. But when you’re diagnosed with lupus, you will frequently need to call your...Reactions0reactionsComments0 comments
Tips for Managing Lupus Brain FogBrain fog: It’s the bane of many people's existence. Also referred to as cognitive dysfunction, brain fog feels like having a head full of cotton through which your thoughts just...Reactions0reactionsComments2 comments