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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Active today

Needing advice from those who have experienced it

Hello, my name is Brandi. I'm 41 years old and have had some sudden changes to my skin and several unexplained rashes in the past 3-4 years. I don't have...

Active today

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active yesterday

The Wicked Movie

I am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers, I can totally identify with Elphaba. (Wicked Witch...

Active 2 days ago

Developing Lupus?

My wife has had many odd issues over the last 20+ years. Always going to the doctor and getting referred to a specialist and never finding anything wrong. Then Her...

Active 3 days ago

How long did it take to be diagnosed with lupus ?

Did anyone had a spinal tap to confirm lupus...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Holiday Tips

Well the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...

holiday peace

Holidays are coming it's a good time to plan how you will protect your peace and keep up your energy. What will that entail for you? ~Racquel~ Team Member...

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