Living

One of the most difficult symptoms of lupus isn't fatigue, joint pain, or sun sensitivity. It isn’t the rashes or hair loss. It’s the grief of losing the life we...

The discrimination in the world is wild. You might have noticed through my articles that appearance has been an issue for me over the last few years. It has affected...

I've had so many negative experiences at medical appointments that I've stopped counting. I have gone through ridiculous wait times, difficult blood draws, doctors who blew me off, belittled me...

It has been a few years since I first started feeling sick and got my official diagnosis. Looking back at those memories it still feels surreal, and I can't believe...

Parenting with lupus has been hard, especially when I was in nursing school. My daughter is 2 years old and is in the routine of getting sick and building her...

Treating lupus can require so many steps that sometimes I feel like my appointments and never-ending phone calls to medical offices should count toward my daily workout goal. It's that...

You would think a simple question had a simple answer. But, there are so many factors to think about, especially when you have been diagnosed with lupus. Living in NYC...

My recent doctor's appointment with my rheumatologist was remarkably interesting. She was my new doctor and the first time I contacted her was through video chat because she had covid...

Traveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on seeing our beautiful planet as long as we...

Anxious much? Anxiety can be so overwhelming as you battle lupus. It’s something so many of us deal with, especially since the pandemic took over our lives. An emotion that...

A few days after returning home from a family vacation, my dad started to feel ill. His throat was itchy, and he had a slight fever. I immediately grabbed a...

I wanted to write about an experience I had recently, which at the time was very frightening, and it made me think a lot about how delicate our health is when...

I cannot believe it’s been 5 years since I officially got my diagnosis. My lupus journey has been an emotional roller coaster, and I cannot believe these past few years...

The stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people think lupus affects your skin. I feel like...

"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from your family, and you must be homesick." Nearly...

"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new friend over dinner. He nodded, then looked confused...

Times have changed! I do not know if it is for the better or worse. I currently sit and try to apply for job applications, and lupus is now mentioned...

My appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was in April. It was now a couple of...

Years ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with them for many reasons, but mainly because I...

One of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types of them, but most days, I find that...