What Advice Not to Give Lupus WarriorsI've been living with lupus for over 19 years now, and I've heard a lot of unsolicited advice from well-meaning people. Some of it has been helpful, but a lot... By Racquel H. Dozier4 min readBookmark for laterReactions 0 reactions Comments13 comments
The Impact of Chronic Illness GriefGetting any diagnosis changes your whole world. Chronic illness grief is a bit more complicated and hits differently because its like a rollercoaster that just never seems to end. One... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments7 comments
Difficulties of Getting a Lupus DiagnosisOn my lupus journey, it took me a number of years before I received my official diagnosis. It was a very long road, with many twists and turns. When I... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments5 comments
Talking With My Doctor About SexIn my experiences so far, I’ve only talked about sex with my rheumatologist as it relates to pregnancy. While it does matter, sometimes greatly, whether or not I’m planning a... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus Life LatelyHaving lupus has been the story of my life. Though life has been living me out honey, I have been hanging on for the best. My doctor recently told me... By Jokiva Bellard3 min readBookmark for laterReactions 0 reactions Comments2 comments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments18 comments
8 Cost Effective Ways To Improve Your HealthAs a lupus warrior with multiple diagnoses, taking care of my health is my number one priority. So, I try to do as much as I can to take care... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments0 comments
Glimmers and Triggers on Your Lupus JourneyWe all know living with lupus can be challenging. When you have to deal with unpredictable flares, symptoms and complications, I know from experience, can really cause some triggering issues... By Racquel H. Dozier4 min readBookmark for laterReactions 0 reactions Comments4 comments
Self-Advocacy and LupusSelf-advocacy is something that has taken me a while to practice. When I first became sick with lupus symptoms I was feeling scared and lost, I didn’t know where to turn... By Charlotte Barnett3 min readBookmark for laterReactions 0 reactions Comments4 comments
Tips for Effective Pain Management AppointmentsThe opiate epidemic in the USA has really made it difficult for those of us who live with true chronic pain conditions. Whether it be from an old injury, a... By Amber Blackburn, RN2 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life, and my plans and dreams for the future... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments4 comments
Surviving the Rollercoaster“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my breath, while angry tears silently roll down my... By Cay Bermingham5 min readBookmark for laterReactions 0 reactions Comments6 comments
10 Things About Lupus No One Warned Me AboutLiving with lupus can be very challenging. When I was diagnosed I had to learn so many things on my own. No one in my family had lupus or any... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments10 comments
Lupus: The Thief of SleepPicture this: The clock strikes midnight and everyone in my home is embraced in slumbers arms. I’m all tucked in the bed, ready to dive deep into dreamland. I’ve got... By Racquel H. Dozier4 min readBookmark for laterReactions 0 reactions Comments16 comments
5 Cleaning Strategies That Keep My Home From Getting FilthyMy cleaning tips help me keep my home cleaner, but not sparkling clean. In my opinion, it’s not realistic to have a clean home when you have a chronic illness... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments0 comments
Why I Hate the Phrase "You Can Do Hard Things"Very Unpopular Opinion: It’s time to stop telling people with chronic illness “You can do hard things.” It is not only carelessly overused and cliché, but it can also be... By Gabrielle Davis3 min readBookmark for laterReactions 0 reactions Comments0 comments
From Feeling Unheard to Setting Up a Support GroupIn the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals, my employer and even with friendships and relationships... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments0 comments
Infusion Tips When Dealing with Lupus and Other IllnessesThere are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then there are monoclonal antibodies which can be given... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I talking about jealousy here? Let me give you... By Amber Blackburn, RN3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Breast Cancer ScareI recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my mind went into overdrive assuming the worst-case scenario... By Charlotte Barnett3 min readBookmark for laterReactions 0 reactions Comments2 comments