Living

Oh boy, the dentist's office. A place where I don't exactly RSVP with enthusiasm. It's like I’m in a dental safari, complete with probing tools, buzzing drills, and the ever-so-intimidating...

When you think of summer, what  do you think of first!?! For many people they think of vacations, time at the pool, outdoor barbecues, baseball games, and just being outdoors...

In my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that I’m exposed to dozens of students’ germs each...

At the beginning of last year I noticed a new symptom that I’ve never experienced before. I remember I was driving at the time when I noticed a sharp pain...

It was a beautiful day in Munich. My husband and I were both 25 years young and excited for our first real holiday since moving abroad to Germany for his...

As a lupus warrior who got diagnosed with Sjogren's and non-Hodgkin's lymphoma, I have been very hesitant to travel. I didn't know how my body was going to react. With...

One of the most pervasive myths is that lupus is solely a woman’s disease. As a man living with lupus, I navigate a landscape riddled with challenges and misunderstandings that...

Ask most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel increased fatigue or joint pain at the end...

Ever since my lupus diagnosis in 2017, my relationship with the sun has drastically changed. Growing up, I never was into skincare or thought about the lifelong effects of the...

I wake up in the morning with work, work, work, by Rihanna playing in my head, because that is all I do. I go to work, and am a mom...

Life has a way of surprising us. Sometimes, the most profound stories emerge from the most unexpected places. My journey with systemic lupus erythematosus (SLE) taught me that resilience and...

Life with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me...

Living with lupus is like waltzing with a butterfly in a hurricane. One moment, I'm basking in the sunshine of energy. The next, I'm swept away by a whirlwind of...

When you are signing up for Medicare there are so many options out there and it’s very confusing. Especially when doing it alone, and if you have little knowledge about...

Do you ever feel like lupus is chiseling away at who you are? One chip at a time – getting closer to your core with each strike? Pieces falling away...

For people living with lupus, toxic positivity can impact our lives negatively. Toxic positivity has many definitions. But, overall toxic positivity occurs when encouraging statements are expected to minimize or...

Intimacy and lupus can take a toll on you and your partner, specifically the lack of intimacy that can occur. Is it hard to cater to your partner while sick?...

The doctor's words, "you have lupus," hung in the air like a storm cloud. I had only heard of lupus in passing. But, my mind raced, filled with images of...

Years ago something happened where I missed an event of some kind due to my health and lupus. I felt down in the dumps for far too long. So long...

I hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned that lupus symptoms can change and evolve over...