Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Dancing with the Butterfly and Taking Control of My Lupus JourneyLiving with lupus is like waltzing with a butterfly in a hurricane. One moment, I'm basking in the sunshine of energy. The next, I'm swept away by a whirlwind of... By Racquel H. Dozier3 min readBookmark for laterReactions0reactionsComments0 comments
What’s The Difference Between Medicare Supplement & Advantage PlansWhen you are signing up for Medicare there are so many options out there and it’s very confusing. Especially when doing it alone, and if you have little knowledge about... By Amber Blackburn, RN3 min readBookmark for laterReactions0reactionsComments2 comments
Would I Be Someone Different Without Lupus?Do you ever feel like lupus is chiseling away at who you are? One chip at a time – getting closer to your core with each strike? Pieces falling away... By Ava Meena4 min readBookmark for laterReactions0reactionsComments6 comments
Lupus and Toxic Positivity: Understanding the Impact on PatientsFor people living with lupus, toxic positivity can impact our lives negatively. Toxic positivity has many definitions. But, overall toxic positivity occurs when encouraging statements are expected to minimize or... By Geri Rodriguez3 min readBookmark for laterReactions0reactionsComments5 comments
IntimacyIntimacy and lupus can take a toll on you and your partner, specifically the lack of intimacy that can occur. Is it hard to cater to your partner while sick?... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments
Common Lupus MythsThe doctor's words, "you have lupus," hung in the air like a storm cloud. I had only heard of lupus in passing. But, my mind raced, filled with images of... By Racquel H. Dozier3 min readBookmark for laterReactions0reactionsComments0 comments
It’s Okay To Have A Pity PartyYears ago something happened where I missed an event of some kind due to my health and lupus. I felt down in the dumps for far too long. So long... By Amber Blackburn, RN3 min readBookmark for laterReactions0reactionsComments0 comments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned that lupus symptoms can change and evolve over... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments7 comments
The Vital Role of Clinical Trials in Advancing Lupus TreatmentsDespite significant progress in understanding lupus, there is no cure. Clinical trials play a crucial role in bridging this gap, offering hope for improved management and outcomes for lupus patients... By Geri Rodriguez3 min readBookmark for laterReactions0reactionsComments0 comments
The Enduring Hardships of LupusOften, my relationship with lupus feels like it’s going to take over my life. It's just too much. I recently read an article that talked about how to maintain your... By Ava Meena3 min readBookmark for laterReactions0reactionsComments17 comments
Spreading the Word About Life With LupusMay is Lupus Awareness Month! It can be hard for others to understand what it truly means to live with lupus. Throughout the month, we will be highlighting the voices... By Lupus.net Team1 min readBookmark for laterReactions0reactionsComments0 comments
Summer Skin Safety GiveawayThe Summer Skin Safety Giveaway is now closed. Thank you for your interest! Here at Lupus.net, we are celebrating Lupus Awareness Month this May by bringing attention to the voices... By Lupus.net Team1 min readBookmark for laterReactions0reactionsComments0 comments
How To Tell If Your Doctor Is a Good DoctorMany new patients with autoimmune diseases, particularly young women, are dismissed, not taken seriously, or even gaslit by doctors. During the year I spent searching for a lupus diagnosis, I... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments1 comments
An Itch I Can't Get Rid OfWhen dealing with lupus, of course there are ups and downs with symptoms. Recently, I discovered hives on my skin becoming worse and worse. I am realizing a lot of... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments
7 Tips For Those Newly Diagnosed With LupusReceiving a lupus diagnosis changes your life in an instant. One day you are healthy and the next you're living with a chronic illness with no cure. It can be... By Geri Rodriguez3 min readBookmark for laterReactions0reactionsComments0 comments
Mother or MedicineLupus can put me in a emotional state where it's hard for me to choose my daughter over my medication. This has been a hard pill to swallow. Having Nena... By Jokiva Bellard3 min readBookmark for laterReactions0reactionsComments0 comments
Finding the Humor in My Life Beyond LupusThere are times on my lupus journey where I just can’t stop laughing at myself. Some of the things that go on in my life with lupus can really send... By Racquel H. Dozier4 min readBookmark for laterReactions0reactionsComments0 comments
Interview: Breaking Down Medicare and Open EnrollmentI interviewed Angelia Owens, a licensed insurance agent in the state of Missouri. Why did I choose Angelia to interview? Because not only does she understand the ins and outs... By Amber Blackburn, RN3 min readBookmark for laterReactions0reactionsComments12 comments
The Link Between Lupus and InsomniaI'm not alone in struggling with lupus insomnia. Insomnia can majorly impact patients’ quality of life, especially since so many of us already live with chronic fatigue. In the months... By Meghan Bea2 min readBookmark for laterReactions0reactionsComments2 comments