From Feeling Unheard to Setting Up a Support GroupIn the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals, my employer and even with friendships and relationships... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments0 comments
Infusion Tips When Dealing with Lupus and Other IllnessesThere are several medications that people with lupus take as treatments. The most common are pills which are taken orally and then there are monoclonal antibodies which can be given... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I talking about jealousy here? Let me give you... By Amber Blackburn, RN3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Breast Cancer ScareI recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my mind went into overdrive assuming the worst-case scenario... By Charlotte Barnett3 min readBookmark for laterReactions 0 reactions Comments2 comments
The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself a certain way that helped me defeat lupus... By Racquel H. Dozier7 min readBookmark for laterReactions 0 reactions Comments0 comments
5 Tips To Manage Lupus With WorkHaving lupus is a full-time job with no pay and no benefits. Thankfully, many are still able to work. So, most of us have to work part- or full-time in... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments1 comments
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've had doctors who tended to be brutally honest... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments2 comments
Strange or Unexpected Lupus SymptomsLiving with lupus brings many challenges. Odd and unexpected symptoms arise. People with lupus may not be prepared for these strange symptoms. Sharing experiences is helpful for everyone. Members of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments9 comments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all zap my energy. At home, I can use... By Meghan Bea2 min readBookmark for laterReactions 0 reactions Comments0 comments
Coping with Skin Photosensitivity and Heat Intolerance With LupusBefore I developed lupus, I used to love being in the sun and getting a tan. It does make me cringe when I look back and remember how I would... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments4 comments
5 Date Ideas for People With LupusDate nights are a bit different now with my diagnosis. Before we used to just go out all spontaneous, at a spur of the moment and decide "let’s try this... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments1 comments
Dear Lupus, I Want Myself BackMy personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was perfect, even though my lupus diagnosis was 6... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments0 comments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to do household chores. After waking up exhausted and... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments11 comments
Tips For Traveling With Chronic IllnessTraveling is stressful for anyone. Making sure you get everything in your bags. Even though you know you will inevitably leave something at home. Usually something that’s important. Even after making... By Amber Blackburn, RN3 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Tell Men I Dated that I Have LupusA first date with a new romantic interest is enough to make anyone nervous. A dozen questions and insecurities jumble around in your mind. Will they look like their online... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Experience With The Heart Complication, PericarditisHeart problems can be a big situation when it comes to having lupus. I was diagnosed with pericarditis. Pericarditis is the inflammation of the pericardium. It usually feels like sharp... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus and the UnknownAfter I had COVID, I noticed that the right side of my face was a bit swollen. I informed my rheumatologist about it and he said with flares this does... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments4 comments
No More Sorrys: Living Unapologetically with LupusAre you tired of apologizing for things that are completely out of your control? Well, you're not alone! On this lupus journey, I have spent way too much time saying... By Racquel H. Dozier4 min readBookmark for laterReactions 0 reactions Comments0 comments
Thrush and LupusFor the past year, I seem to have been plagued by recurrent yeast infections. The main issue for me has been vaginal thrush, although, I have suffered with oral thrush... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments7 comments
When Your Medical Team Keeps GrowingI can barely keep track of my doctors anymore. I know the important ones, of course, like my primary care and rheumatologist. I have an eye doctor and a dentist... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments0 comments