you were just talking to me about what you do! Great minds think alike. Thanks for asking this question, 😀
Amber Blackburn, RN Moderator & Contributor
I was indeed! The best way is just to set aside a notebook or make some sort of excel sheet (which ever works best for you) to keep track of whatever you are experiencing. I based my sheets on what was needed for my disability hearing and expounded on that. I include my pain level, what I took as far as medications go, along with non-medicinal means of treatment like heat or ice etc. and then go down the list each day of any and everything you are feeling. If you are trying to determine if you have lupus and/or find the best treatment modalities for you, you might even jot down what you are so you can see if anything pops up trend wise. There is no right or wrong way to track your symptoms, just don’t it!!
Amber (lupus.net team moderator)
Samantha Costa Member
These are awesome tips! Thank you for sharing. 😀
Ava Meena Moderator & Contributor
I keep an app on my phone and just write down anything that seems relevant at the time. It builds up quite a list in between appointments! Then I review it a few days beforehand and narrow down the essentials (some stuff ends up being not as useful as I originally thought) and write them down on a paper. She always pays more attention if I bring in handwritten notes, haha! -Ava, lupus.net team