Awaiting results
I will soon have an appointment with a 2nd rheumatologist. I finally showed a red flag on the ANA test. It suggest systematic lupus. All the while I was diagnosed as having Fibromyalgia. This pain is constant from morning to night. I feel horrible. I began a gluten free diet and only eating mediterrean diet (fish, seafood) and of course chicken. I eat only brown rice and salads. Have stayed cleared of all specific things I cannot eat. I am tired all the time. I stay hydrated as much as possible. Every single part of my body hurts so bad. Most days I am crying because of the misery and desperation.
, I can hear the pain and exhaustion in your post. Sadly, it is all too common in the lupus community to have a long waiting period between when symptoms begin and receiving a diagnosis. I hope your next rheumatology appointment results in some real answers, clarity and a treatment plan to help manage the pain and fatigue you are experiencing. I hope there is some comfort in knowing you are not alone. Making diet and lifestyle changes while juggling multiple conditions takes so much strength and focus. Your strength is inspiring. Know that it's ok to cry, all of your feelings are valid. Be gentle with yourself. We are here to listen and support you along the way 💜
Sending warm thoughts your way,
Gabby (team member)
I can understand your frustrations. Thenpain can be so hard to handle and it takes so long to get a firm diagnosis. It's so hard to get out of the funk and sadness lupus can bring. Just know you are not alone. Keep eating right and coming back here for support. We all know and understand the pain and frustration. I hope the doctor's visit gives some answers and relief. Sending you gentle hugs. ~Racquel~ lupus.net team member 
I hope and pray that this second rheumy will listen and take time to look at all pieces of the puzzle. If you aren’t already I highly encourage you to track your daily symptoms. It helps the dr to visually see what’s been going on! Versus us just telling them what’s been going on and how bad our pain is. Please Keep us updated! And lest us know how your appt goes. Sending big hugs!
Amber (lupus.net team moderator)
I am so sorry to hear this. Hang in there. I have been there. YOU ARE NOT ALONE. I went totally gluten free myself, hardcore, and it made me worse. May I suggest you try a different diet if this one isn't working? I will say, I couldn't figure it out on my own, and used Mymee.com and it is AWESOME. However, the most important this to remember is that everyones triggers are different. Tracking helps, but if what you are eating isn't make a difference, change it up and try something else. , So glad that you found something that works for you! I really appreciate your sentiment that "everyone's triggers are different." It's so true! No two lupus stories are exactly the same. Thanks for sharing your story with us!
Gabby (team member)
