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Angry Much 😡

What do you do when you get so frustrated and angry with your body because it either doesn’t operate how it used to or won’t do what it needs to for you to feel better?

  1. When my joints start to bother me at night

    1. ,
      There's nothing more frustrating than being in pain and unable to sleep.
      I hope you are able to find a bit of relief and some restful sleep soon.
      All my best, Doreen (Team Member)

    2. I can so relate. Drives me crazy. What do you do when this happens to settle them down? ~Racquel~ team member

  2. It's hard for me to sleep

    1. that’s so frustrating for sure . What have you tried to get some sleep? ~Racquel~ team member

  3. I have multiple auto-immune disorders, but we chose to treat the Lupus because it has the most possibility for serious complications. On a day I feel fairly well, I tend to do much more than I should, then pay for it for a few days after. It's so hard to watch people doing things I use to love to do. Some times I admit I throw a bit of a pity party (and a tantrum occasionally). It's even harder when the people in your life don't understand that you can't go out and do something you were able to do, even 6 months ago. In the end, I suck it up and grab a cup of tea in my mug that says "I'm a person who wants to do a lot of things, trapped in a body that doesn't"

    1. ,
      That mug sounds perfect!
      So many in this community can relate to the occasional pity party.
      Always know this community understands and is here for you.
      Many hugs, Doreen (Team Member)

    2. I am with you on doing too much sometimes and having the pity party. Lupus with other issues is hard. I’m glad you allow yourself to feel it all and then keep going. I love the mug it is perfectly stated! ~Racquel ~ team member

  4. bethv, lupus absolutely is life altering and it's a cruel disease. I know it has been very hard for you and that you never know what to expect the next day. What caught my attention was the comment about your occasional pity parties and tantrums. Most of the lupus warrior I've spoken to have been Type A, personalities. Strong, determined, relentless and sometimes hard headed. We arent used to being vulnerable and often find ourselves no longer in the pack we've been in for so long. It sounds like you're adjusting and know a lot of the ropes. Bethv, It's OK to have occasional pity parties and tantrums. People who love you will get over your moodiness and anger as they learn more abt Lupus. Your tea cup says it all. Blessings 😇🫂 (I have a sign that hangs on the door knob when I'm sick and don't want to see anyone.) "The 🐯ess is in her den".

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